I am newly diagnosed with MS.
All started with optic neuritis about 10 years ago. I found one day i got up and things didn’t look quite right. I covered up my left eye and found apart from a grey blob i couldn’t see anything. I went colour blind and felt like i had eye strain and had pain when i moved my eye.
Anyway went to a neurologist and had an MRI and got told just optic neuritis.
Fast forward after a few minor episodes of optic neuritis to 4 years ago. I had had enough and i wanted to know more. My doctor referred me to an opthamologist who tested my eyes and told me he “thought my previous episodes of optic neuritis represented an MS pattern” I got referred to a private neuro who did another MRI which came back normal and i got told i had recurrent optic neuritis and if I had any more bad episodes to get referred back to them.
Around a year ago i found i was getting really fatigued and found it hard to walk long distances. I was starting to notice memory issues and long story short after several blood tests got diagnosed with chronic fatigue syndrome.
Go back to January when I was still having episodes of optic neuritis and just had a feeling something more was wrong. I found i was getting more episodes of anxiety, my balance seemed to be all over the place. My tiredness was becoming more noticeable and i was forgetting stuff more frequently. I asked for a referral to another neuro who specialised in MS and they did another MRI and a VEP test. A couple of weeks ago i was officially diagnosed with MS due to a couple of lesions showing in my brain.
I felt vindicated as other people always treated me like a bit of a hypochondriac (including my GP)and also relieved i finally had a concrete diagnosis!
I had an MS nurse come to visit me and talk me through what happens now but it was a lot to take in.
I have tried to stay positive but reactions from other people have been really hard to deal with. Some people have been really supportive and others have just kind of skirted round things and avoided talking to me including my family. Does anybody else find this?
(Sorry for the long boring post)