Hello,
My symptoms started nearly a year ago now…
Last March I noticed double vision when looking left and down, put it down to tiredness etc at first, but it didn’t go and just got worse. Got sent to the hospital eye treatment centre by opticians and spent the next 7 months going back and fourth for appointments and check ups. In the meantime had blood tests done by GP and came back all clear.
Double vision gradually got better but the a new symptom developed, tingling nose tip. MRI requested by eye specialist and this came back clear. The symptom of tingling then progressed to my cheeks and lips and the eye doc decided to refer me to a neurologist (Nov).
I haven’t yet seen the neurologist but since the referral I am now suffering constant tingling in my fingertips of my left hand and some weakness in my arm.
It seems that every few weeks symptoms disappear for a few days/couple of weeks and then something new starts??
I have contacted the hospital to enquire about my appointment as im finding this all distressing and the tingling is quite frankly driving me nuts at times because sometimes I have a awful sensation when holding or touching things.
I just want to know what is happening to me 
Thank you for listening x
hi there honey
i can’t answer your question except to say that neurological symptoms come and go and sometimes stay!
your appointment with a neurologist must be coming closer, has your doctor given you any idea of how long its likely to be?
meanwhile take it easy, try to enjoy each day as much as you can.
eat well, get plenty of sleep and go for a walk.
take care, i remember those feelings of b efore diagnosis.
carole x
Hello and welcome 
Neurology is pretty complicated in that the same symptoms are found in many different conditions so, while your symptoms are found in MS, they are found in lots of other conditions too, some of which are relatively easy to fix (e.g. vitamin deficiencies). There are three things that follow from this: it can take a while to work out what’s going on, it’s important to keep an open mind and there’s a good chance that it’s nothing terrible.
Sensory symptoms can be a nightmare, but there are meds that can help so please go and see your GP and ask about getting something to try at least (e.g. amitriptyline or gabapentin). A lot of GPs are reluctant to prescribe things without approval from a neuro, but it is certainly worth asking. If you have a choice of GPs at your surgery, maybe pick the one you think might be most sympathetic!
I hope the neuro appointment comes through soon.
Karen x
Thank you for your response
I was unsure whether to go to the GP or not because I thought there’s nothing he can really do for me at the moment, until i’ve seen the neuro.
I contacted the hospital today, just to make sure I had been referred and im still on the waiting list, there are no available appointments at the moment unfortunatly but think I will take your advice and go and see my GP in the meantime. I haven’t seen my GP regarding any of my symptoms, maybe he might be able to rule out any other conditions.
From my symptoms and internet browsing (not always a good idea)! I came across MS and this website. I’ve had a clear MRI test tho so surely that will rule out MS?
Thank you x
It’s worth seeing the GP to ask if he/she can help with symptoms, but also to see if they can try and get you an earlier appointment with the neuro. No harm in asking anyway!
As far as MRI & MS goes, it depends on several things.
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Some MSers only have lesions in their spinal cord so a clear brain scan cannot, in itself, rule out MS. [I think your symptoms are to do with the brain not the spine though.]
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MS lesions increase in number over time and it’s not that uncommon for people with an initial clear MRI to go on to get a diagnosis of MS.
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MRI is not perfect and it’s only as good as the settings that are used to make the images. Standard NHS MRI settings can miss small lesions.
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Radiologists make mistakes.
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Different types of MRI scan show up different things. Lesions may be missed if there wasn’t an appropriate scan done. [Given that it was an eye specialist who referred you, I would think that your scans would have included ones that would show up MS lesions.]
Googling is absolutely natural, but I really recommend not doing it! Way too easy to self diagnose terrible things!!!
I hope your GP can help.
Kx
Hi there! Limboland can be a scary and frustrating place. You`ll already know about that, eh?
As Karen says, it could be one of many things that is causing yoursymptoms.
i spent many years in limboland (still am actually, but have been told it is defo not MS), but we can still get meds to help us. I hope your GP is of the listening kind!
hang in there and keep talking to us here, who understand what you are going through.
luv Pollx
Thank you for your comments and information, which is very helpful and supportive.
I’m going to call my GP surgery tomorrow and book an appointment to see if there is anything he can prescribe to relieve some symptoms.
I’ll update on progress etc.
Thank you again, best wishes x