Hi everyone…just reporting on a recent change in visual difficulties as I was wondering if anyone here has had this happen.
So far I have had the blurred and double vision then about 3 years ago started having my left field of vision change to look like that bathroom window effect with the tiny circular shape in the centre of vision.
This is all old news for me now but yesterday evening I was on Facebook when things in the the living room appeared to fly at me, Began to think we might have a poltergeist …lol
It just happened again so I sat and watched to see what was actually happening. There is a plant in a basket on my coffee table and it looks to me as thought the field of vision which includes the plant (centre of field of vision ) zooms in quickly and then zooms back quickly
Hi, I also have a new visual disturbance, it seems different to yours. My right eye is blurry but only on the far right side. I was talking to an ms nurse this morning & she said I should go & get an eye test as she thinks its not to do with ms. I had an eye test a few months ago & all was as usual just need reading glasses. Maybe, if you can go & have an eye test to be sure of what’s causing the problem. x
I’m truly sorry, I can’t help you out with your visual disturbance, except to say that you should probably get a professional opinion, ie. your MS nurse if you have one or (preferably) your neurologist.
But I did want to say I love your name. Great song.
Hi gosportnancy
The effect you refer to could be a problem with the muscles that focus the eye, and/or the nerves that control them.
You could think of this as the optical version of a twitchy leg.
You need to see an opthalmologist about this (GP referral), and also talk to your MS Nurse.
Yes, it could very well be MS related (especially since you have a record of visual disturbance) and you want to get it onto your records now.
Hi guys. Thanks so much for your replies. The new symptom appeared around the same time as the worsening of the general weakness in my facial muscles I am having with this relapse,
MS support including MS nurses moved out of my local hospital around the time I moved into the area as the local hospital is closing down. I think they must have seen me arrive and got scared off…lol
I am a full time carer and housebound so pretty much do my own thing, Peer groups have been very supportive…thanks again…
Dr Geoff is right. The main symptom of MS, that we notice, is on our muscles.
The eye has muscle that move it from side to side and up and down. It’s exactly how a mouse moves the cursor on your screen.
There are other muscles inside the eye, attached to the lens. These are responsible for focusing the image at the back of the eye. They stretch the lens so it becomes flatter, or allowing the lens to relax so it becomes rounder.
When MS strikes it can affect one, some or all of these muscles. This could explain the disturbances in your vision.
I’ve only got an ‘O’ level in Human Biology. So on the basis of “a little knowledge is a dangerous thing” ignore everything I’ve written and get an appointment with your GP or Optician.
When I had optic neuritis I went straight to my local branch of Specsavers. A highly trained optician was only too delighted to examine my eyes and, as he’d just sold me a new pair of glasses three months previously, had an up-to-date record of what my eyes looked like normally.
He wrote a diagnosis on the spot and told me to take it to my GP. My GP wrote something down and sent it to a neurologist. The neurologist wrote something down and sent it to the MRI dept of the hospital. The queen said “There, there” and went to find the dairymaid. The dairymaid said," There, there" and went to see the cow. the cow said, There there" … well you get the picture. I have nystagmus and the professionals can’t explain Fatigue? It’s bleeding obvious! Jerks. I spend all day fighting the wrong signals sent to my muscles. It’s EXHAUSTING. And you can quote me on that.
Oh my!!!..That is so like what has been happening to me since the early nineties…and still no diagnosis.
I guess it has been no fun for you as it is so frustrating…still…your telling of this tale made me laugh that much I forgot what my original question was…lol
Hi, I also went to specsavers for an eye test, because I seem to have a ‘blind spot’ on my right eye.I had an eye test July last year no problems, I wear specs for reading only. I spoke to an ms nurse about this first & she thought probably not to do with ms & for me to go to have eye test. The test took much longer than usual, first he thought it was caused by three muscles in the eye, then he went to get another opinion. The result was that they think its a lesion causing the problem with my optic nerve. He wrote a letter for me to take to Moorfields & said the wait shouldn’t be long just 3 or 4 hours!! I was so exhausted I didn’t go. I’m now assuming it is to do with ms & wonder if I should go…advice please.
Hi,thanks Gingerlil (great name)! I went to Moorfields today & no prognosis for the blind spot in my right eye. They want me to go back Friday to see Neurophthalmologist, wrote on letter optic neuritis? Neuro problem? . I hope I’ve spelt that correctly. So sounds like it could be an ms problem, as if I haven’t got enough problems! Regards Helly.
I’m in the middle of a bout of uveitis - causing all manner of interesting visual disturbances in my right eye this time, spectacular swirly ‘oil lamp’ effects everytime I move my eyes - it did my left eye several years back before the possibility of MS was raised. In both instances the uveitis (inflammation of the inside of the eyeball caused the vitreol (jelly-like substance) to pull away from the inner wall of the eyeball. Steroid eye drops every hour for the next 7 days, and every other hour for the following 7 days by which time I should have a follow up appointment with the uveitis specialist(s).
It may be connected to MS, it may not - I always work on the expectation that any and all new symptoms have nothing to do with MS until proven otherwise.
Apologies for the delay in getting back. A couple of weeks after I started this thread I became so ill my husband called an ambulance and I ended up being the cause of a lot of confusion in A and E as no-one had any idea what had happened.
Then while waiting for test results to come back I went into cardiac arrest and followed that with several days in a coma in ICU.
Turns out the weird zoom in and out thing was due to poor blood supply and oxygen to the brain. I was then sent for an echocardiogram which showed up left ventricular systolic dysfunction ( very common cardiac issue in people with MS).
The after effects of the cardiac arrest and coma include brain injury with scattered and random memory loss, which is the most likely reason I totally forgot I was registered with this forum.
Anyway, I am back now and have just renewed my membership to my local group
Hello gosportnancy That’s awful news and no surprise it’s taken a while to get back to anything like your old self. You do sound well now, but I do hope that you continue to recover from what must have been a nightmare for you both… great band by the way!
Hi Sue…I clearly didn’t explain properly about the cardiac issue and MS. I should have explained that the particular cardiac issue I have (left ventricular systolic dysfunction) is the most likely cardiac issue someone with MS might experience, not that it was commonly found in people with M.S.
I didn’t mean to alarm anyone. Also this medical description of the condition actually sounds worse than it actually is. It just means that my heart doesn’t pump out blood at the correct level.
I’m really glad to be back to the land of the living
