Hi, new user here, was advised I likely have MS by a neurologist on May 30th last year (World MS Day, irony not lost 
). After multiple MRIs and a lumbar puncture, I finally got a confirmed RRMS diagnosis at the start of March this year.
I was given a booklet on treatment choices and told to expect a call from the regional MS nurse in the next 2 weeks. Unsurpisingly with the current state of the NHS, I’m still waiting for that call, unable to get anyone in the hospital neurology team to answer the phone and when I show up in person to enquire all they will say is “Yep, you are on the list to be contacted”
Was wondering if there are other folk here, who would have any suggestions for who to contact for MS related symptoms? I’ve had a lot og pain in my legs for over a month now and I cannot get through to my local GP or MS nurse.
My MS clinic does it’s best to pretend I don’t exist. I’ve kinda just taken it into my own hands and now just use the NHS for their tech (MRI’s mainly). I don’t even care what they say about the reports because i’ve found them to miss things or be just plain wrong! Maybe not all of the NHS is broken though (?)
With regards to feeling better, do you supplement at all? I’ve created my own protocol that helps me with a lot of the symptoms.
If you prefer the chemical route, I was given Amytriptyline for pain relief because normal pain relief wouldn’t touch it. Whilst this kind of worked, I didn’t like the weird numbness to life it gave me so decided to come off it. Others swear by it though
I hope you have now heard from the Nurse or will hear in the next few days. I remember going through a similar period when I was diagnosed and yes, was given similar replies about how I was on the list. I think the basic problem is a longstanding shortage of MS Nurses and Consultants ( my experiences were 19 years ago and for whatever reason, the NHS just can’t recruit sufficient numbers . I’m also guessing that MS Nursing isn’t a particularly attractive career option . Overworked and it must be quite draining trying to provide support for patients with a condition for which there is no cure).
I’ve no idea about other options for symptom treatment. Just keep trying your GP Practice or if you can afford it, and depending on the symptom. get a private consultation ?