Hi all, havent been on for some time so hope all are well.
I started Copaxone on Tuesday, since then my relapse symptoms seem to have worsened and I have fallen twice - never having fallen before.
Has anybody else had similar things happen to them at the start?
All comments welcomed
Thanks
It takes a while for DMDs to get into our system properly so I would think that it’s a coincidence that your symptoms have got worse. Starting a DMD is pretty stressful so maybe the stress has exacerbated things?
I was on Copaxone for 4 years. It worked brilliantly for me - 3.5 years relapse free! I hope it works as well if not better for you
Karen x
Hi,
I’m sorry to hear that you fell.
I’ve been on Copaxone since August and it seems to be working okay. I felt a bit light-headed when I was first on it, but I think that was the back-end of a relapse, and as Karen says it does take a while to work. I probably started to feel that it was working at the end of last year.
Good luck and stick with it for a while.
Shane.
The “official” line is that it takes “up to six months” to have a real effect - and then we are into the realms of averages, and how much it may help. I doubt if you would have any effect after a few days.
I had three relapses in the six months before I started Copaxone (mid-June last year) and I have only had two since. That is not as good as Karen, but a bit better than average. And no, I did not notice any side effects at all.
Geoff
Hi there,
I’ve been on copx for about 4 years now. Main side effect has always been skin issues. Specially the first 6 months. But fatigue level is overall better & fell brighter in myself. Plus only 2 minor relapses in that time. So I’ll stick with it for now.
Does take a while to get into your system so be patent & if in doubt talk to your nurse or the copax help line.
good luc
jo