Im new here, just finally diagnosed 8 weeks ago after about 14 years of issues on and off. Just after i got my diagnosis, I relapsed again (4th time in less than 2 years) and even though I am over the worst of the fatigue and walking issues, I have been getting severe electric shocks for the last couple of weeks in left arm/down ribs. This is in conjunction with numbness/itching/pain on right arm/chest/back. I have also had hypersensitive fingers/half of left hand for about 9 months which has not improved and I wear bandages on my fingers all the time as otherwise the pain is unbearable. I’m going to the doctors on Tuesday to see about gabapentin or such like. I am not on any DMDs at the moment as have been advised not to start on any until I start a family (which we are trying to do atm).
My work place have made life quite difficult for me so I don’t think the stress has been helping but hoping to go part time in next month or two - will be waiting about another 5 months for PIP assessment.
Just feeling quite down about the fact that this relapse doesn’t seem to be improving - just changing. Not sure if I should ask for steroid treatment at this stage or if they will say I am over the worst of it and see how the anti-convulsants work out. Tried amitriptyline last year and it did nothing for me.
Nice to hear from others in similar situation?