over 12 months ago I started experiencing symptoms so after every blood test going my gp sent me for an MRI the results eventually came back with spinal inflammation & brain lesions my gp told me I had ms & arranged for me to see a ms nurse who explained cis as my symptoms were daily & said only a neuro could diagnose, I then had a meeting with a neuro who said he couldn’t diagnose MS as I continued to have symptoms but said if they continued it could be PPMS. That was 12 months ago & a transverse myelitis diagnosis, more mri’s, a negative lp & evp’s a second opinion I have now been diagnosed with RRMS by a neuro who knew what she was talking about rather one reading the macdonald criteria!
My initial reaction was one of relief, finally an MS diagnosis, which my ms nurse had told me to expect all along & it wasn’t PPMS. Explaining it to people everyone reactions were the same mine included it wasn’t PPMS so it was good news, I can start on meds, my critical illness would kick in so I have financial support and alls good it was a positive result.
But reality has crept up on me, I’m due to complete on a house this week, I’ve signed up for a 25 year mortgage, my critical illness does not cover this amount where I always had a gut feeling I had ms I didn’t need to accept it as it wasn’t reality with tm, I would not get any worse I do actually have MS. my kids are 9 & 5 what the hell is the future going to hold.
Sorry for the long post just guessed you guys would understand.
Thanks ruth x