Hi Gray,
That’s so tough. Those of us who’ve been there/done that with a wonderful mother will know how bad that is. So sorry - and sorry you’re dealing with all the health rubbish at the same time. Take care of yourself!
V
hi Gray,
Just to. say sorry about your mum. my mum was 43 when she died. I always think its a double whammy, loosing a mum but also the person they were. All I can say is it will get easier with time.
Sending (((hugs)))
kel
x
Thank you all for your very kind words xxx
Hi Can some one please advise , been having all my symptons for , just coming up 6 weeks. Gradually seem to be improving then some mornings all the dizziness @ tingling comes back. Really get’s me down when I think it’s passing. New to all this ! Is this normal ?
Hi,
I’ve only been diagnosed a few months - I’m no expert. I think it is quite normal to have fluctuations in symptoms. Mine get worse if I’m tired or get a bit hot - I’m generally better if I feel I could do with another layer of clothes. Though, sometimes I feel a bit worse and can find no reason.
Jonathan.
Thanks , just worried I am not gonna get any better than this , can’t drive or get out on the bike just really getting down after 6 wks. I know people on here have it far worse and longer than me , just scares me that’s all . I’ve always been in control
I’m afraid that remission is rarely in a straight line so that, just when we think we’re on the right track, a bad day comes along to make us fear the worst again. Thankfully, the good days start to outnumber the bad ones more and more as time goes on and 6 weeks is still pretty early so hang in there; it’ll get easier!
Kx
Hi Gray sorry to hear you’re having a tough time. My relapse last year which led to relapse lasted 4 months. Started with double vision & vertigo, had episodes of numbness, pins & needles. Things gradually improved but it was a slow process so don’t panic. Rest when you need to, take care of yourself. Now that I’m diagnosed I’m on treatment and finally feeling normal again. I still get some strange symptoms occasionally but nothing that stops me from living a normal life. Rizzo’s right, it will get easier!
Thank you for your support Driving my wife mad . Iv’e never been big on patience lol Thanks
Well have heard today spinal MRI next week the 12th and then neuro appointment 2 weeks later . Been pushing for it …but now feel apprehensive & little scared
Hi Gray, it’s natural to feel scared and apprehensive, plus on top of everything else you’re carrying a lot of stress right - I lost my mum 7 months ago. I was having relapses before that, and along with my obvious grief, the additional worries and stress compounded on my health. It’s hard to believe right now I know, but things will improve. With regards to your appts; the fear of the unknown is nearly always very scary. We don’t know what to expect or what the outcome will be, but if there’s one thing I have learned, it’s that no amount of worrying will change the situation. That doesn’t help you now I know, but keep in mind that you’re seeking answers for a reason. You’ve already taken the hardest step by seeing your GP in the first instance so whatever the outcome of your scan and neuro appt, you’ll get through it because that’s what we do. Good luck and let us know how you get on. PM me anytime. Debbie xx
Thanks for all the support people, it’s good to have the chance to chat Well I wasn’t gonna ask this but I have to driving me insane !!! I’ve been using doctor goggle ( bad idea ) and have convinced myself I have ppms not rrms so will not get any better than this . What I have read being a male in my 40’s with no previous symptoms ( had sore legs twice in the last 12 years lasted about a week each but GP but it down to underactive thyroid ) that its the most probable I will have ppms I’ve had a brain scan and shows some lesions , I have mine spinal MRI this week then neuro 2 weeks after , Sorry for blabbing on just can’t stop thinking about it
I would bet my mortgage on you not having PPMS for several reasons, but the main two are that your symptoms wouldn’t have started so suddenly and they wouldn’t be improving.
Kx
Thank you xx I know I’m just over researching it ( probably in the wrong places ) I am getting slowly better but the numbness in my hands and lower legs , and a feeling of being squeezed around my stomach hasn’t changed At all and because I can’t drive at the moment ( eyes aren’t great yet ) I just sit at home worrying and googling . But anyway Thanks once again
Like you, I was in my 40s with no history of previous symptoms when I had my first attack. I had three relapses in the first year (and possibly one other one which I didn’t have recorded as it was all a bit confusing and I wasn’t sure what was/wasn’t a relapse at the time). I thought things would never improve and was scared and angry. Four years later I am still working 30 hours per week at the day job and have an ad hoc typing job in the evenings. I have an active social life, I still go to parties, still dance [when my legs let me ;-)] and still enjoy life every day. My MS is definitely relapsing remitting but it did take a long time for the remission to reveal itself. The recovery was so gradual it took me a while to realise that it was happening. Have you thought about keeping a diary so that you can look back in a few weeks’ time to see if there is any slight improvement? It might just give you a much-needed boost?
Please,please, please don’t write yourself off yet. It’s still early days and once you have a firm diagnosis and the right medication there is every chance that things will stabilise. In the meantime, take each day as it comes, be kind to yourself and take enjoyment in the little things in life. I know this is easier said than done because I’ve been there. What really helped me was talking to people who had been through the same thing and come out the other side. That was the turning point in my mental attitude.
Of course, you are still dealing with grief too. Have you thought about seeing a counsellor? Sometimes, we need someone neutral to talk things over with and let all these feelings out without worrying about upsetting our nearest and dearest. This forum is good but we can only help so much …
Tracey x
Gray, we all know Dr google is not a physician who should be relied on, but we all do it. I can’t remember what I was looking at last week but it said my ms is probably benign because it was so long between my first symptom and diagnosis, 19 years, and because I am in my 40’s the prognosis is good. I remember my GP and Neurologist saying that how ms starts is a good indicator of the future. So between the 2 of us we have been looking at oposite ends of the ms google spectrum. Actually I think I was on the ms decisions web site when it mentioned benign ms given my history, and this is a recomended web site so is more reliable I think, I will have a look and see if I can find it again and let you know. What sort of bike have you got? I am not into bikes but I know a lot of people who are and I always find it very amusing when they argure one bike against the other.
Thanks everyone I know I’m just being impatient but never been stopped before , the vision think is doing my nut , it’s getting better but when I’m trying to move ( not sure How to describe it , just things,don’t seem steady cant make out detail Hey ho just have to wait… As for bike have a speed triple would so love to get out and play
Really having a bad day , tightness around my stomach , pain in the back of my head and vision rubbish again. My symptons seemed to have eased a lot and my mood lifted untill today. Stuck in the house while my poor wife goes to work , it’s only been 8 weeks and I don’t think I can deal with this , just feel like my life is over
It’s really hard to keep hopeful when we’re in a relapse, especially if it isn’t something we’ve gone through before very often. All I can tell you is that, somehow or other, we make it through. It sucks and it seems impossible at times, but we get there - and so will you. Just take it one day at a time.
Kx
Thanks trying I really am But all these things are going through my head ( all bad ) This is so hard ! And you lot on here amaze me how you deal with it