Hi im new on here, im really struggling and really feel like i need some support. It started 5 weeks ago with left sided numbness across my head, face, neck, shoulder, arm, hand and fingers, intially my left arm just felt heavy which then progressed to tingerling and also to start with it was just my thumb that was tingerly which then spread to all my fingers, i had an appointment with a neutologist on saturday, he said it could be one of 3 things, 1. MS 2. caused from covid as i had recently had this although not that unwell with it or 3. a spinal tumour the past few days i have started to feel a bit more sensation in my fingers and can now feel hot/cold, my hand isnt as stiff and i feel i have more sensation than i did, my scalp also doesnt feel numb like it originally did, i have an mri booked next week but im really freaking out about everything, it appears things feel slightly better than they did, does this happen with ms?
I am sorry that you are having such a worrying time. At least you have a plain-speaking neurologist who does not evade difficult questions or talk in riddles, but it’s all a bit of a shock to your system. I’m afraid.
Most of us who have or had RRMS are familiar with the trajectory of relapses as they build, peak and recede. That’s what they tend to do.
I hope that you get some answers soon,
Thank you for your reply, is that what tends to happen with ms relapses, you get the symtoms, they increase then they start to dissapear?
Did you get a diagnosis?
Yes i did, i was diagnosed with ms last august, im doing much better now and have started on kesimpta.
Hello,
Welcome. I too have RRMS and should hopefully start on Kesimpta after I’ve had my thyroidectomy, next month.
With Relapse-Remitting, I can usually ride out a light relapse just by taking painkillers and exercise --as long as relapse not too heavy, I can manage.
This January though, was a bad one and I needed a Prednisolone (steroid) top-up again to get through it.
The remitting part after relapse, I feel has not yet fully materialised this time; strange?
Actually, I’ve not had any DMD treatment for last five years now and so looking forward to restarting again, on Kesimpta this time.
Hope your MS treatment goes well for you.
Best,
JP