I have had symptoms since 2009, been really ill with it since 2011 and pretty much known it was MS for about a year and half and now after nearly 4 years of tests and being told I have one thing or another, I finally got the letter from my neurologist saying Multiple Sclerosis. I breathed a sigh of relief.
The sigh of relief didn’t last long when I realised that there were no next steps in the letter. No indication of what type I could have or what I could do to manage it. So I ordered loads of info booklets from MS Trust to educate myself and called my GP to make an appointment to ask questions. That was the moment that I found out my GP has gone on a 3 month sabbatical, any time I have seen another GP they have said they are not happy to do anything without talking to my GP, but I made an appointment with another GP anyway and went to that appointment yesterday.
This might seem like I am just venting but I do have questions, this GP said that now that I have a diagnosis, the GP surgery will not help me at all, with anything to do with MS. I asked about getting braces/supports for my joints (mainly my wrists) and she told me that they were no longer permitted to give prescriptions for those items and she spent the whole 10 minute appointment telling me she couldn’t answer questions or do anything for me. Does anyone know if any of that is true?
Even though I have quickly made peace with the diagnosis, I still feel like I’m on an uphill battle to get any help from the medical services in my area. Can anyone give me any advice as to what I should do next? All I want to do is to adjust my life accordingly now that I have my diagnosis and become at least a semi functioning member of society again.