Having read lots of the posts about new diagnosis I feel very lucky. I was diagnosed with PPMS just over 4 weeks ago following an incredible chain of events. 3 years ago I had an ACL reconstruction following a skiing accident. The operation was a complete success but the rehab of my knee just didn’t seem to work despite me doing all the exercises I was given. I had been discharged by my consultant but he agreed to see me again with the physio. He then sent me to a gait clinic but no real success there although there was a suggestion that my problems might be neurological. A few months more and the orthopaedic consultant referred my for a complete spine MRI. This showed a stenosis near the base of the spine so he referred me to a colleague. The colleague took one look at the scan and and said he didn’t like the look of it and was “going to spend some money” and get me two more scans (brain and thoracic spine) THAT SAME DAY!!! These came back showing lesions, and a visit to a neurologist produced a diagnosis of PPMS.
I’m sure it would have been many years down the line before I got a diagnosis as my symptoms are a leg that doesn’t do what I want it to and has some stiffness, some problems with my throat, peripheral neuropathy in both feet and some fatigue. Now I know what’s wrong I feel a bit liberated. I’ve found an excellent neuro physio who’s making a huge difference to my mobility.
My husband took the diagnosis a bit harder than I did but he’s been so supportive (despite us having some sexual problems) and seems to be accepting of it now. No idea what will happen next but I’m feeling positive and have just taken up the saxophone. By the way I’m a 66 year old woman.