Hey all. I was recently diagnosed with MS a few days ago. I instantly felt quite concerned as after I initially noticed having a double vision effect when I looked to the right around a month ago, I had an eye test, saw my GP, was referred to an ophthalmologist, and then scheduled for an MRI. I was constantly trying to reassure myself (using ChatGPT, then Google, not great to self-diagnose I know!) as I wasn’t showing any symptoms of something more serious like a brain tumour, haemorrhage, bleeding, I came across something called ‘cranial nerve palsy’.
Anyway! Long story short, when the doctor told me there was inflammation and if I had heard of multiple sclerosis, my heart did sink really. I told my pregnant partner who burst into tears and now here we are. I’m trying to stay positive and still continuing breath work (Wim Hof Method), supplements (Lions Mane, Turkey Tail, Omega 3, Magnesium etc) and after reading a few comments here and there just being more aware of my body, knowing exercise is very important and also healthy eating.
I’m glad there’s this forum as I guess like many things, it’s easy to feel a bit alone with a diagnosis. Happy to connect and chat with others going through this journey too.
Hi @JackB, so sorry to hear about your diagnosis - must have been such a shock and horrible timing when you and your partner are expecting. Must be very hard, especially when your partner is also naturally worried and I imagine you must be feeling pressure to ‘stay strong’ etc. Have you got other friends/family that you can lean on or have a coffee/go on a walk with?
I’ve also been diagnosed very recently and relate to that feeling of ‘being alone’ too, but have now heard about so many people who find ways to live with MS (including my girlfriend’s cousin, who has had MS since he was a teenager and now has a 6 month old baby! I wouldn’t have even known unless my own diagnosis came up). No one wants anything wrong with their health, but it’s helped me to realise that SO many other people find ways to weather various health storms for both themselves and their loved ones.
I feel a lot like you and have been quick to find things to help, and enjoy continuing with normal life as much as possible. I do hope you also find time to ‘have a moment’ if you need - I’ve had a big cry to some films/TV shows to get it out my system! You’re allowed to really feel it all, and different things might hit at different points (I had a real moment the other day when I realised I would likely be on a DMT for the rest of my life - how unfair to always be on/have to think about medication!).
I’ve found this forum so helpful and hope it’s also a source of information as well as comfort/moments of ‘ah ha! So it’s not just me!’ for you too.