Hi all thanks for reading.
i would appreciate your advise on what’s best to do next or shall I just give up?
sudden vision loss and right sided paralysis 4 years ago that came and went over several months and then left with some mild permenant vision loss and some very mild right sided wealness. Nothing on MRI’s, confirmed weakness at time and confirmed vision loss
Intermittent worsening right sided weakness, numbness and tingling face, forearm and lower leg, all right side. Mild weakness found my physio but GP says no weakness
Jan this year, worsening of symptoms above, plus loss of balance, breathing difficulties, problems with eye sight but different this time. Intermittent episodes, very severe some days that I have to use a stick to not fall over and it’s been difficult to walk and drive with the numbness. Double vision as well, also intermittent. Admitted into hospital after new right sided numbness and weakness, mri brain clear. Further more detailed MRI, clear.
Saw neurologist 2 weeks ago and I’m no longer getting the above symptoms and have been left with no balance and a new numb patch on my belly. He says he doesn’t know what’s wrong and again because my MRI is clear they are not worried.
this all seems like MS to me. I’m frustrated because I always see GP or neurologists etc usually on a good day. My physio and the episode where I was admitted, seems to be being ignored as they confirmed there was weakness.
what else do I do or say? Am I expected to wait until this very mild weakness becomes visible because it’s daily or has worsened before they take it seriously
I feel like I need an advocate at these appts because they just seem so dismissive