Hello, I’ve been struggling with all sorts lately but my gp has had to refer me back to a neurologist.
Is there anyone who lives in west London out there that can tell me how long you waited to see a neurologist?
I heard someone from Leicester on tv last week say they’d waited for a year although they didn’t say they had MS.
Hi Dolly, I see this thread began in 2022 but no surprise the concerns are the same, just different names.
I began symptoms in 2001. In 2005 I had my first MRI via a Rheumatologist. Then in 2010 I saw a Neurololgist for the first time.
Around 18months later a Locum Neuro told me I have M.S. Then a year after that, the Consultant Neuro diagnosed PPMS.
So in answer to your question, it took almost
11 YEARS for Diagnosis.
This was outside London. I understand location statisticss don’t vary too much with Neurology.
Take care,
Chrissie
Hi, I am new to the forum, I was diagnosed 10 years ago with RRMS. It took about 3 months from seeing GP to seeing a Neurologist then. I actually received a letter after my MRI saying I had had a demyelinating episode, or something along those lines. So of course I had to google it. I am in SW London. My friend was referred in March to Neurology, due to see them in June which was cancelled until November. I saw my MS Nurse at the beginning of May had an MRI in June, due to see Neurologist next week to discuss DMT. I am not a very good patient as had a bad time initially with the MS Team and the DMTs they gave me, so have avoided seeing them and taking DMTs. Feeling very sorry for myself at the moment as feel quite unwell.
Please don’t assume that history will repeat itself and you’ll have a bad time again. This is an opportunity for a reset and taking a fresh look at what you can do now to keep yourself as well as you can be. So never mind what happened in the past - that’s water under the bridge. I hope that you come away with a treatment plan that you feel positive about.
Hello LizzieBeth, I actually only posted this thread this summer, I was originally diagnosed in 1991 but my ms converted to secondary progressive about 10 years ago after a protracted stressful period. I have however been through an even worse period last year after my partner of nearly 40 years was diagnosed with a rare blood cancer with a particularly poor prognosis (although he’s doing better than expected) and my overall health has declined drastically so some of my issues could be this rather than MS, but it would be useful to know which.
Already off to a rocky start, several phone calls yesterday from a nurse telling me my appointment was cancelled after a lot of confusion my MS Nurse called to speak to me and sort things out. She knows I will just close down again if there are too many problems. Woke up today and I have flu. I have told the MS nurse I am not well just in case I have to rearrange next week. I like my MS Nurse she is aware of all the problems I had when I was first diagnosed and being let down with support.
I’m sorry you’re poorly and hope that you feel better soon.