Neuro appointment is Friday, naturally worried.

New diagnosis and before diagnosis
1

Hi all :slight_smile:

Tomorrow I have my 3rd Urology appointment and as nothing has changed, in fact, its got worst at times Im expecting the nurse to prescribe some meds to help, as she said she would at the last appointment. So fingers crossed whatever she gives me helps. So, glad I plucked up courage to tell me GP. I urge anyone with bladder / blowel probs to speak to their GP, it’s been less embrassing than I thought and I’m now kicking myself for not speaking up for the past 2 years !

Well ,this Friday morning at 9am (uk time) I have my first Neuro appointment. Relief, it’s near but I’m naturally worried.

So, I don’t forget ( which I tend to do alot) I have written a list of all my syptoms. Which seems pretty long… I have even remembered to add that I have had 4 bad attacks of Tonsilitis since last October up til May/June this year. I was warned once more by this October and they would whip them out but that never happened.

However, the rest of my syptoms have definitley got worst since then. In fact, they have got worse since referral in August. For the past month everyday I get this weird vibration feeling in my legs and feet, sometimes in the upper part of my body. Scary at first, but now its coming and going through the day every day and night Im getting used to it, even though its weird…However, last night my head had these feelings that did scare me. The pins and needles are more frequent too as is the numbness.

I fell after losing my footings in town on Monday, I was on my own and lucky enough I was near a shop that sold walking sticks so I bought a foldable one and made my way to my car ,then drove home and rested. Its not the first time my legs have felt wobbly and weak, so I have added this to my list.

My husband is coming with me, as I figure with my memory I won’t remember everything he says, two pairs of ears will be better I think, lol…

Regards

Kim xx

2

Good luck on Friday Kim. Just one thing to note - mention the main/ most troublesome symptoms and then, if you have time, add in the others. It’s just that you will have limited time and your neuro may try to move you on without hearing your most important symptoms. I hope it goes well - I know it’s nerve-wracking but you’ll be fine and I’m sure your hubby will back you up. Let us know how you get on, Teresa xx

3

Thanks Teresa, I will do that, thanks the heads up. I hear its a half hour appointment, which I expect will fly by. I’m first appointment of the day, so pleased I’m not waiting around all day for it. Regards Kim xx

4

Yes, you’ll be glad to just get up and go and not spend the day worrying. Hope you get a good neuro! Teresa xx

5

Arw bless you, thanks Teresa. Yep 9am appointment, makes a change for me I’m normally last of the day and they are running late, lol.

Went to Urology today re my bladder and frequency /urgency to go. Been given Fesosterodine 4mg to start with and see how I get on, go back in February. Taken the first one already…fingers crossed it helps x

Kim xx

6

Good luck for your appointment x Sam x

7

Yes, I have had Fesoterodine too. I found Solifenacin to be more effective. We’re all different though! Teresa xx

8

How did it go?

Pip

9

Hi all.

Well, Neuro doctor was late so I got in at 9.15am and was out by 9.35 am ! Quick huh.

He asked about any previous family health issues, so I rattled of family illnesses and if anyone else had neuro problem for which I said not that Im aware off.

Had weight, and blood pressure done. He did eye movement tests with his hands and my finger to his finger. Then on lying down on the bed,he bashed a stick on me everywhere, a long metal twiser looking things to see if I could feel the vibration of it, then pricked on me different places asking if I felt sharp or dull pain. Funny, as everywhere on my right side he pricked felt dull feeling compared to the left side which I felt was sharper ? Then , with my eyes closed he brushed something on each heel to my toes. Finally, getting my to walk on my heels then my toes followed my walking in a small line. Also he checked in my mouth /throat area.

He explained he is expert in the brain and that he didn’t think this was MS but I had got mutliple problems and therfore his referring me for a MRI, …he said wait is about 4 weeks, and then about 2 weeks for results. Naturally, he said he hopes this will be clear.

I asked if this wasn’t MS as he suspects what happens next, he just said lets see what happens next.

If something shows then we can go from there naturaly but If it MRI is clear, I don’t know what the next step is ? I made sure I told him the vibration feeling is now everyday and through the day, pins and needles and numbness, with extreme tiredness. I also mentioned I was under Urology for my bladder problems.

So, thats the latest update. Of course I was hoping he’d say you’ve got this, and we can sort it out with this method, but he didn’t :frowning: However, after reading other people’s neuro appointments I suspected I get sent for MRI if Im honest.

Thanks for asking about me Pip xx

10

Hi all.

Well, Neuro doctor was late so I got in at 9.15am and was out by 9.35 am ! Quick huh.

He asked about any previous family health issues, so I rattled of family illnesses and if anyone else had neuro problem for which I said not that Im aware off.

Had weight, and blood pressure done. He did eye movement tests with his hands and my finger to his finger. Then on lying down on the bed,he bashed a stick on me everywhere, a long metal twiser looking things to see if I could feel the vibration of it, then pricked on me different places asking if I felt sharp or dull pain. Funny, as everywhere on my right side he pricked felt dull feeling compared to the left side which I felt was sharper ? Then , with my eyes closed he brushed something on each heel to my toes. Finally, getting my to walk on my heels then my toes followed my walking in a small line. Also he checked in my mouth /throat area.

He explained he is expert in the brain and that he didn’t think this was MS but I had got mutliple problems and therfore his referring me for a MRI, …he said wait is about 4 weeks, and then about 2 weeks for results. Naturally, he said he hopes this will be clear.

I asked if this wasn’t MS as he suspects what happens next, he just said lets see what happens next.

If something shows then we can go from there naturaly but If it MRI is clear, I don’t know what the next step is ? I made sure I told him the vibration feeling is now everyday and through the day, pins and needles and numbness, with extreme tiredness. I also mentioned I was under Urology for my bladder problems.

So, thats the latest update. Of course I was hoping he’d say you’ve got this, and we can sort it out with this method, but he didn’t :frowning: However, after reading other people’s neuro appointments I suspected I get sent for MRI if Im honest.

Thanks for asking about me Pip xx

11

Glad he was thorough Kim. It was always quite likely that he was going to order an MRI. This is one of the diagnostic tools used by a neuro to try to put the pieces of the puzzle together and nothing to worry about. Try not to worry - you are now on the path to finding out what the problem is. Hopefully it will be something that can be successfully treated. Take it a day at a time, Thinking of you, Teresa xx

12

Hi Teresa :slight_smile:

Im sitting here feeling the vibration feeling like mad right now, didnt have it this morning at the appointment, typical hey…lol

Well, I’ve felt bad for years to be honest. For my 40th birthday I was given a treatment voucher so I chose a lovely Indian head massage. The room was lovely and calming, smelt like heaven I couldn’t wait for it to begin but within 10 mins I was in tears in pain on my neck and lower back, she said Im sorry but I think you have problems , you should see you doctor. My doctor put everything down to stress.

Only becasue I saw another doctor have I got this far, sadly he left the surgery two weeks after he referred me. I’ve had to go back to the other doctor and oh boy she is not happy I’ve been referred. It’s just stress she says…

My mother in law says she hopes its not stress , only so it’s one in the eye for the doctor after all these years of brushing me off. I know what she means by this. I love my mother in law, she’s great, old fashioned and modern all in one, god bless her. Of course she isnt my mum, but she died when I was 24, but she makes a damn lovely subsitute :slight_smile:

My daughter said her MRI experience was horrible, she was only 14 when she had hers last year… I still close my eyes and use there ear phones and try to dream Im on a exoctic beach, lol…

Right now, Im more relieved that someone has listened and helping find out what could be wrong. xx

13

My doctor also put everything down to stress Kim and I put up with it for at least 3 years before I went back again after my symptoms had progressed and could not be attributable to stress. Glad your MIL is kind and is a good mum substitute - so sorry you lost your mum when you were young! It is a relief when you see the neuro as you know someone who is properly qualified to find out what is wrong, is going to at last! I don’t know how bad an MRI is as I was too claustrophobic to try it. If pressed though I would have done so with a sedative. Take care, Teresa xx

14

MRI is fine. Just close your eyes and ask for music. I had rock anthems!! The trick is to keep your eyes shut. I’m not in the slightest claustrophobic though, so perhaps easy for me to say. After all the talking and being made to perform like a seal, I was actually enjoying the time on my own with my own thoughts.

15

Hi All

I figure if my then 14 yr old was brave enough to have it, so can I… I hate small spaces too, but going to close my eyes . I think my daughters one lasted at 15 mins, so thats not long I suppose… Not sure what the wait time really is in Colchester but Neuro doctor said about 4 weeks. I reckon it’ll be after christmas now, though it’d be nice asap to get it over and done with.

Kim xx