I have a new sympton and think it could well be MS related.
Since the onset of MS I have been grinding my teeth whilst sleeping, probably caused by the stress related to MS and my difficult lifestyle now.
Have worn a soft gum shield, made by the dentist, but recently got so bad, I chewed a new one in two in a matter of a couple of weeks. My mouth and tongue are covered in gumboils and ulcers. My dentist sent me to Maxifillio at Worthing hospital who confirmed that none of the areas were malignent and made me another gum shield.
Chewed through it again, so off to dentist. Now he has filed all of my teeth so there are no sharp edges, also made me a hard gum shield. Wonderful, as within days the jaw ache and headaches I’ve suffered for years have gone.
The sores and ulcers though have got worse. A week before Easter I had an awful burning, tingling pain over my whole scalp, excruciating for a few minutes then about 24 hours pain less intense afterwards. The following weekend, I had the same pain in my mouth, roof of mouth, tongue, inside of cheeks and lips. This pain felt as like my skin had been removed and the bare flesh exposed and subjected to a hot poker. I went to the dentist who checked and has once again referred me to the hospital for an urgent appointment as he thinks I may have some form of Neuralgia. Still waiting for a date. I have my annual Neuro appointment on 19th June, have tried to bring it forward but nothing available.
On Sunday, had the same again in my mouth, it is so painful, I felt like taking a month’s supply of Tramadol and Amitriptyline. Called for an emergency appointment at Doc’s and was given a 10.30 yesterday with a nurse practitioner, who suggested amtripyline - which I already take. She told me to wait for the Maxifillo and Neuro appointments to get a diagnosis and the correct treatment. For 24 - 48 hours after each attack I can only drink tepid drinks of thin soup through a straw, During the attacks have increased my tramadol to 2 every 4 hours, ( usually 3-4 daily) but they have no effect on this level of pain.
Have any of you fellow M.S. guys and girls experienced anything like this?