Hello everyone - I am RRMS diagnosed Dec 2008. Two years ago I was on Copaxone and had a dreadful relapse, I basically lost all the feeling in my right hand side. After being on steroids I thankfully regained everything back, but I was left with a burning sensation where I previously had no feeling - plus the nerve burning goes all the way to below my eye to my foot.
My consultant put me on Gabapentin and eventually I was on 1800 mg a dayof the stuff!!! and even then it began to stop working (plus I had put on over 2 stone)!! my MS nurse wanted me off it (I didnt realise how addicted it was) and told me to even use CBD oil to get off it (yucky taste) as she wants me to go on Pregabalin - researched that drug and it can be just as bad!
Does anybody know of any other medication for nerve pain?
Thanks for reading!!! Liz x
PS (Thanks Jen) x
I have the worse nerve pain left side and foot ugh. i take nothing as the meds are worse. DO NOT take lyrica preglabin my daughter is hooked on that stuff and its been a nightmare for her to get off it, she has been going down slowly and i warned her before she took it but still went ahead. its a year of coming down and she is still going as they had her on such a high dose. she actually has a life now and can do things.
duloxotine i tried it is supposed to help and is not addictive but i didnt like it. but others have used it fine.
yeh cbd oil is probably safer in the end. i use mindfulness. i try to write blogs and do things. i find keeping cool is better too. I have ppms though. xxx i hope you find some relief. x
amitriptyline sees to most of my nerve pain…those in my um cheeks and rear of my thighs…felt like sitting on broken glass…really nasty boudsx
I used to take Gabepentin, got up to a really high dose, but weight on, eventually it stopped working, I tried Pregabalin, made me feel terrible, mood wise, doctor told me to come off it, don’t take anything now, use cold pads, heat pads for my back and do mindfulness, doesn’t take it all away, but makes me feel better in myself, good luck.
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