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Need to vent big time

At the southern general hospital today,for my neuro app that I have waited nearly 2yrs for as previous appointments have been cancelled by the hospital due to my doctor off on long term illness. I was kept waiting over two and a half hours , I was their with patient transport, and as usual they took me early, I went to a cheeky nurse at 4-15 pm to be told dr was running over 45 mins late, my transport finished at 4-30 and he would have to leave me another nurse said the back shift transport will take you home but does not start till 6-30 . I have just had a major relapse and am still very unwell, had not pain meds with me and could not stop crying, the nurses turned their back, so I had to come home. I am really upset and in a lot of pain now. I felt like a silly wee lassie crying like that but a patient who’s app was the next week was taken right away, she was polish , I am not complaining because she was polish but why was she seen and not me. I did really need advice as my left side of my body that has never been effected before was this time and I am left with the whole left side of my body feels like it’s on fire, I will phone in the morning to get another appointment , I live depending on the traffic 45-60mins from the hospital.so now I am exhausted and in a really bad mood and am still tearful. Sorry all needed to get this off my chest. Xxxxxxx

hi janice

you’re probably at your most vulnerable when going for a neuro appointment.

i got upset last time i went to see mine.

just because the car park had been moved and i parked in the same old car park that i have always used.

it used to be cross the road and main entrance is right there. go in, book at reception and a short walk to neuro bit.

i was lost, when the main entrance wasnt there i assumed it woud be round the corner.

i ended up walking for 40 minutes! (which is a BIG deal with my spazzy legs)

then arrived late and ms nurse dashed out, saying “there’s just time for your timed walk”.

i wanted to cry at that point but didnt. when she pointed out that i was slower than usual, i said that if they had let me know the hospital had moved…

they sent me a map in the post!

so i’ve hijacked your post but at least it shows that you’re not the only one!

carole x

OH jANICE

i GUESS YOU ARE TALKING ABOUT THE SOUTHERN IN GLASGOW, i HAVE BEEN WAITING SINCE NOVEMBER FOR AN APPOINTMENT VIA NORTH LANARKSHIRE TO BE TOLD THAT I SHOULD TRY GLASGOW, I CAN SEE AN EMAIL TO MY MP , I HAVE RESISTED TILL NOW BUT THIS IS A JOKE, IRRONICALLY I HAVE BEEN PUSHED BACK BECAUSE OF THE DOCTOR BEING ILL WONDER IF IT IS THE SAME ONE?

So sorry to read of your distress. My first neuro was forever going off sick and when I did see him he asked me what I thought I should do!!?? Errrm, think he was the ‘expert’, wasn’t he? The next time I saw him he left me waiting an hour and a half past my appointment time, had no idea why my appointment had been forwarded so I had to explain everything to him again only to be told “I’ll see you in 12mths”!! Well that was the turning point for me. Second opinion demanded. Transferred to a new neuro at a different hospital and he is nothing short of superb. Can you not do the same?? You deserve to be treated with respect and to feel comfortable in your hospital care xx

In your position, Janice, I would talk to my GP about whether there are any other neuros within reach that I could be referred to. It is possible for hospitals to run outpatient clinics on time - it’s very rare but it’s possible, my neuro manages it (the only consultant I’ve ever seen who does!).

A bit of sympathy from the nurses wouldn’t go amiss, either. (((Hugs))) and I hope you get a good night’s sleep and that you feel better tomorrow.