Hi All how you all doing nice to see the sun out. Not to hot yet shopping to do.
Do any of you have neck, shoulder pain it feels a bit like wiplash, l have tried a new pillow no good just wondered if its my ms or my age l just know that its painful and l find it hard to turn to the left. I am walking with my two walking sticks maybe that the ms nurse did not help when l told her. Well l will get off to do the shopping or try too hubby pushing me while l tell him wish way to go take care all regards Jan xx
Jan I get a lot of secondary pain from using one stick and it gets much worse if I use two. I have tried a walker and for pain and posture they are much betterā¦however I tend not to use mine as I regularly get my feet tangled up in it and have ended up a couple of times with me on the floor and it on top of me! I am told that I put far far too much weight on my stickā¦could you be doing that?
I try to rest my arms and not use my stick, sometimes if Iām strong enough I can use the furniture and walls etc, I do rather tend to lurch from one item to the next. My problem with walking is that my legs donāt feel strong enough to hold me up, hence putting to much weight on my stick so unfortunately it does mean even more time sitting if my arms are painful. An electric chair would be the answer but my house is not really suitable. I do have a manual one but of course to self propel is more painful that using a stick! Frying pan and fire!!
I do hope you find out whatās causing it but it may be worth getting someone such as a physio to check if you are using your sticks correctly.
Oh, donāt you just hate it when you lose a word!
Ive just tried to have a serious/sensible /coherent and grown up conversation with two medical people who came to see my husband.
Well, I tried but sadly didnāt suceed!
Typically the more important it is to you to appear normal the worse it gets ā¦ I canāt tell you how many words I lost and how many times I totally lost my train of thought mid sentence. Felt a total idiot but hey ho!!
Iāve realised over time that muscle burn is perhaps a āsymptomā that I overlooked as I assumed that I was VERY tense but oh boy, I now know that particular feeling of burning is not going to be helped with a massage! I was a bit confused sometimes why they felt so bad
Pat, you are so right about posture - my physio was trying to get me to move my hips to one side. At the time I thought she was a bit confused but I have seen myself walking in the mirror and Iāve realised what a ādisturbed gaitā is all about - I do overything on my left leg. I stand/balance and walk on it but that is where my weight stays.
When I was instructing at the gym a lot of āstanding feet hip width apartā covered a multitude of sins. It was probably only in the last month of teaching that I had to verbally instruct a warm up whilst doing squatsā¦ as Iād have tripped if I tried the required steps!
Sonia, talking about ādisturbed gaitāā¦ at the end of corridor my flat is on there is a rubbish chute room (is that the right spelling?)ā¦ anyway the door has glass panels so when I take my rubbish I can see my own reflection.
My right foot is now completely turned out! I have tried to walk with it turned straight ahead, as it should be, but itās more difficult to walk than usual.
I seem to be putting all my weight on my right leg but it doesnāt want to take my weight if I try to walk with it straight.
Weird this MS eh?
Glad Iām not the only one who canāt think of a word, canāt spell, loses the thread part way through a conversationā¦ or even part way through a sentence!
Recently I opened a door to a friend and say āBye Byeā!!! Luckily we had a good laugh about it.
Pat, Iāve done that too, talking to a couple of people and saying single word (which seemed ok at the time) to one person then turning to another to talkā¦ then turning back to person A and saying cringe āoh and what I meant by ***** wasā¦ā
itās sort of leaving reminders for me I can also completely forget what I was saying mid-sentence Itās soooo embarrassing
Iām so glad itās not only me saying the wrong things! Iāve often said āgoodnightā to my daughter when she leaves for college in the morning, fortunately she understands. But I cringe when I think of how Iāve jumbled things up while talking to other people. They probably think Iām not just physically handicapped but mentally deranged.
My concentration is so poor I canāt count the change in my purse even if I try to put it in piles of certain amounts. I lose words but also chunks of memoryā¦ I saw a doctor and made him look up all my medical records as I couldnāt remember what was wrong with me I.e my dx, what drugs I took or what I was allergic to. I didnāt know how old I was, I knew my date of birth but couldnāt calculate how old it made me.
My daughter has since put everything into my phone now as she thinks Iām a potential danger to myself. How embarrassing is that for an ex nurse??? Please tell me I havenāt lost the plot, itās not always that bad, sometimes Iām okay.
Ivāe had very bad pain in my right arm from shoulder down to hand almost feels useless really aches to move and struggling to stretch or use it, right leg doesnāt feel good either, weakness is usually my problem rather than pain, the pain has a burning feeling with itā¦weird isnāt it
However weāve had some lovely sunny days in Frodsham and last weekend did a lovely 3 mile walk (roll) along the canal with Lee and Frazer Its amazing where I can get with the chair!!! it was very narrow and quite rough ground.
Hi Michelle l do think its the walking sticks making the pain in my shoulder painful its my right side that is the weaker leg that will not lift up over door steps l fell head first out of the back door trying to take wash basket out one step at a time lucky l fell on that right hand will not grip well thats hard going beening right handed.
Lovely sunny had a wheel along the Humber saw a few ships,
Sorry Cath, think you wrote this ages agoā¦ but just want to reassure you that you have not lost the plotā¦ well unless I have too!
Counting money? OMG I get into such a pickle. I count it over and over again and get more confused every time.
I was playing with my grandson once and I suddenly couldnāt remember his name!!! Panic stations!!!
Iāve had it for ages, before I even knew I was ill. I used to work with a lot of spreadsheets and databases at work. Was known to be good at creating them etc. But over a period of time I noticed that I didnāt always know what I was doing. Got into such a state of confusion! Few times ended up in the toilets crying as I really thought I was losing my mind (and with a numb calf on my leg and pins and needles all the time in one hand, the penny still didnāt drop!!!).
Normal for MS! And yes, mine is ok sometimes. It seems that once it starts it goes into spiral mode and unless you stop yourself you get sucked into the vortex!!!
i get really bad muscular neck and shoulder pain, usually on days when my fatigue it at its worse especially when Iāve been walking with my stick lots. I have been having aromatherapy massages weekly at my local MS Therapy centre and it works wonders on it. Definitely worth trying
Jan I suffer with a frozen shoulder, it makes getting dressed painful and lots of times throughout the day it hurts.I donāt walk anymore, I am in an electric wheelchair all day .
Pat our vicar came to visit us earlier and both he and I were forgetting words, I think it is the national forget things day. XXX Don.