Hope everyone has had a great Christmas.
im really struggling to understand what my neuro is thinking. I’ve only had one appointment with her back in early Oct. I’ve since had MRI’ brain and full spine - clear. All the blood tests imaginable - normal (except Vit D, but isn’t everyone a little short on that! Ha ha ), NCS - ‘absolutely normal’ and waiting for the results of a lumbar puncture.
each time, I’ve been for testing, I’ve only gotten the top line results from the letter she sends my GP, I ask what now, and he says you need to see the neuro again… Call her secretary and get told no point in seeing you just yet, the neuro, suggests we test …
My GP, says he won’t second guess what the neuro is thinking… And the neuro won’t see me to discuss my results, or explain why she suggests more tests… The secretary said she usually pops to see people when they are on the ward to have the lumbar puncture, but she didn’t come to see me… It was Christmas Eve, so guessing the holiday season kicked in
She initially mentioned MS as a possibility, but also made it clear my symptoms could be matched to lots of other things too.
I’m just wondering if anyone with a MS diagnosis, had ‘normal’ NCS?
in my mind, because they came back normal, I’m wondering if MS is now off the table and the lumbar puncture is to look for something else.
thanks for reading