Is there anything that can be done?
Is it a standard MS symptom?
Since the beginning of this week it has got really bad. I’ve had it before, but it is more intense than ever and the main reason I’m not doing any of my normal things atm. I feel ‘car sick’ all the time and not eating much as I feel even sicker when I do.
I do have other ‘flare’ symptoms this week too, maybe because of overdoing it at the weekend. Feel utterly rubbish.
You could try an over the counter travel sickness pill like Stugeron, which can be be pretty effective. Fresh Ginger is also said to work.
That is a very good idea. I even have some, although I’ve never taken them (bought last year to go on hols with, just in case) I’ll take one and see.
Ginger hasn’t worked, but maybe this will.
Thank you.
Nausea bands/ acupressure bands also know as travel sickness bands that go on wrists. Or could try self acupressure on wrists. The p6 point or “inner gate”: 2 or 3 finger widths down from the top crease in your wrist (at the base of your palm) there is a groove between two large tendons. Gently apply pressure to this area when you feel nauseas.
Thanks Lenney, I don’t feel any improvement when I do that, but it is very pronounced at the moment and it is difficult to hold onto my wrist all the time. I’ll see if I can get the bands.
have you just started a new medication?
when i started on tecfidera i felt nauseaous but omeprazole helped loads.
hope it soon goes away
carole x
Thanks Carole,
The weird thing is that when I google nausea and ms, not much comes up. I’ve been telling my docs that I have vertigo, but I’m not sure now that I actually do. Nothing is spinning, The effect of movement feels exaggerated, but it isn’t worse in any particular position and the nausea is the same all the time. The best I can do to describe it is that I feel very travel sick. You know when your face feels sort of cold just before you are sick? That’s how I feel all the time.
My stomach feels acidic as well, which is unusual for me, and it is rising in my throat all the time. I have more p&n than usual, did have extreme sound sensitivity at the beginning of the week, and when it started I had a bout of diarrhoea. Sorry if that is TMI!
I keep telling them my eyesight is weird too, but I can’t really describe it and the optician didn’t find anything.
I’m waiting for more MRIs to check how active my MS is as neuro thinks I’ve had a few relapses in past six months, then I get to choose a DMT, assuming I won’t be allowed steroids now because of waiting for the MRIs
I am on Pregablin, but presumably any nausea from that would get better rather than worse the longer I was on it.
I do have long running issues with my left ear, but that should cause positional vertigo, not this…
hi again
i was given omeprazole when i had high dose steroid by IV.
i didn’t use them at the time
but tecfidera (delightfully) made me projectile vomit on the stairs!
tec has settled down now,
maybe you have severe heartburn so omeprazole wil help.
however they are now saying that long term use of things like this is bad for us.
hey ho
carole x
I have omeprazole too, will maybe try that this morning. It’s coming from my head though, I think, rather than my stomach. My neural screaming (called tinnitus by medical people, but it doesn’t come from my ears) is very loud this morning and the nausea is worse as is my headache.
Nausea can a symptom connected with migraine headaches. Do you have headaches frequently?
No, headaches as such are unusual for me but I have migraine with aura sporadically and my history of migraine complicated my MS dx.
I have nausea and tinnitus at times, i just feel sick although never vomited. I have noticed at times it comes along with a UTI, so perhaps checky our urine for one.
I was told its just an MS thing i have to deal with, i also get vertigo. It just goes away all of a sudden. I do drink ginger beer which helps.
Thank you. Do you have cervical lesions by any chance?
If I had to dx myself, I would say it is my neck and cervical lesion. I had a few weeks with no tinnitus, but last week did some physio and had a busy weekend and then this has hit me. I think the tinnitus is a warning that my lesion isn’t happy.
My neck has been dodgy for a long time since an accident. The lesion from this year is in the same place.
Drs say that moving my neck cannot affect the lesion. But I don’t think that is true.
Hi Teal. I get the dizziness too sometimes. If I get nausea I take a domperidone tablet (used to be available over the counter, as Motilium, then it went on prescription. When I was dxd I asked the MS nurse to write to the surgery asking them to put it on my list of meds as it helped with the MS related occasional sickly feeling - they wouldn’t prescribe it otherwise)
Was also going to suggest Stugeron. Also you can get something called Buccastem M over the counter which is for nausea associated with migraine, but might be worth a shot. Maybe ask your pharmacist? Then GP?
My husband (doesn’t have MS) is having problems at moment with migraine and cyclical vomiting (on the migraine spectrum). He’s had investigations and has various things to stop the nausea and throwing up, but nothing yet which works quick enough. I feel like an (amateur) pharmacist at times, but have picked up a fair bit recently about nausea!
Hope you feel better soon.
Louise x
Thanks Lou, that’s really useful.
Hi Teal
It does sound to me that it might be related to vertigo. Have you tried any vertigo exercises? A physiotherapist might be able to help you with these or you can do an internet search for some.
Heres one I’ve done from time to time (originally taught to me by a physio):
Sit on a chair or bed with something to hold onto to keep yourself steady. If possible have a timer handy (my mobile phone has one), otherwise get ready to count. If possible have the background in front of you blank. I do it in front of my wardrobe with the doors shut.
Hold a pen / other implement out at arms length
Slowly turn your head fully to one side then the other whilst keeping your eyes focused on the pen
Keep at it until you can’t do anymore (i.e. you feel dizzy or nauseous). This might be 20 seconds or up to a minute or even more.
Once you’ve regained your equilibrium, do it again and try to slightly increase the time or counts.
Try to do this several times per day for a few days, each time increasing your time. I was told to do it 5 times per day. Once you’ve got up to an easy couple of minutes or more, start the exercises again against a busy background, in my case it could just be opening the wardrobe door or sitting in front of the TV (switched on of course!)
See if it helps.
Sue
I have had lesions shown in different times, C5/C6 and T2.
Hi Sue
Yes, my physio has given me an exercise which involves moving my feet and my eyes. She noticed that I don’t move my eyes properly and just hold my head rigid, this could be an ms thing or the result of year s of dealing with my old neck injury.
The trouble with the exercise you describe is that I don’t seem to have the obvious dizzy/not dizzy feeling to enable me to stop, or to train my brain to ignore it (which is what those exercises do, I think) I just feel gradually more sick and stay that way for days. I don’t necessarily notice it while doing the exercises.
Interestingly, the cinnarizine (stugeron) seems to be helping with the nausea, but has definitely lessened the tinnitus. Which means it is either blood flow, or inner ear nerve, which I think fits with C2 lesion, or maybe I actually have an inner ear issue, probably from only lying on my right side for six months. My ear actually hurts, but not enough to be an infection so GP doesn’t think it is relevant.
Thank you to you and everyone who has replied here. This was/is really getting me down.
You people are the best!
Pip x
Oh and my neck doesn’t move to the left, so another reason why those exercises don’t work!
An interesting observation, I thought I would try the exercise Sue recommended, and just move my neck as far as I could.
Ove the years, physios have told me to rotate my neck. It just got stuck. But when I do the eye exercise, I can turn it much further. So my brain must have been panicking when it was a ‘neck’ exercise and tensing my neck muscles. Weird.
