Hi all, I’m new to the site and just reading people’s stories.
I’m 42, female and back in 2019 I started having what I would say was severe IBS. All my symptoms and labs were looking at autoimmune crohns or colitis but the could not find any evidence. After a rough few months I. 2023 I started to take CBD and improved and was able to return to work.
Two Jonathan after my return, I started with pins and needles in my feet and burning pain at night in my legs, in March 2024. A GP told me I probably had peripheral neuropathy and I just had to live with it. After a week I saw another GO who straight away referred me to neurology, where I live it was a 12 month waiting list on an urgent referral so I went private and finally say him in October last year.
I had a neck and spine MRI that was clear, my bloods at that point wasn’t anything significant showing up. I have abnormal EEGs which have also worsened since October and my reflexes in my ankles are weak.
I had a lumbar puncture recently which I found out yesterday have antibodies that can point to MS or some autoimmune but at the same time can be indicative of a tumour somewhere.
The plan now is a full body CT, a breast exam, PET scan and a biopsy of my muscle and nerve in my leg.
I’m just wondering if anyone has ever had a normal MRI but still had a MS diagnosis.
Apologies for all the info it’s all very new and processing it is kind of crazy but I have a relief that I’m not imagining all my symptoms.
Oh crumbs, what a time you’re having. Well, they’re clearly determined to get to the bottom of what ails, and it’s great that they’re being thorough, but I’m afraid it must be very stressful for you.
I’m afraid that I have no personal experience that might help. I hope that it doesn’t take long for you to find out more.
Thank you, my gp last year said he needed to prepare me for an MS diagnosis. So I had kind of got to the point that it would be an answer.
I’m actually not stressed, overall I feel relief as I got to a point where was this something o was imagining.
I knew something wasn’t right as he wanted the nerve biopsy done before I saw him, however he called me back once he had the results of the lumbar puncture. I also feel that this neurologist is genuinely making sure that I’m on the right path and that makes me feel very safe.
Now I just have to wait for everything.