Does this sound familiar?

Hello

I am completely numb from my ribs down and have been for about four weeks. I can walk ok but a bit wobbly. Lots of pins and needles in my feet. I had this about two years ago but it went away after about 4 weeks. I didn’t see the neurologist for about 3 months by which time I was back to normal. I had something similar about 4 months ago but it was just my hip that went numb and again it went away eventually.

Even without the numbness, I can be a bit unbalanced now - and my memory has got pretty bad.

I have been referred to a neurologist specialising in ms - my GP thinks that might be the cause and has asked for an urgent appointment but than can mean up to six weeks apparently. Waiting is really difficult!

Have others experienced these symptoms and gone on to be diagnosed with MS?

Thanks

David

Waiting is awful, and I’m afraid it goes with the territory when there is neurological stuff going on. I hope that your appt comes around soon, but there will probably be more waiting thereafter, as I am sure you know.

You also know that there isn’t much use speculating about what the matter is - you want expert opinion based on facts, not random guesswork from strangers. But that wasn’t your question: the short answer to which is yes, in my personal experience. But that doesn’t mean that MS is what is the matter with you. Symptom matching is absolutely the worst way in the world to self-diagnose. So please try to just keep calm and let the thing play itself out. You will get to the bottom of what is the matter in the end. The trick is to keep an open mind and not translate the GP’s ‘better just exclude MS to be on the safe side’ into ‘it must be MS!’ in your mind when, in fact, you just don’t know yet - and you really don’t know yet.

Good luck with it all.

Alison

Hi Alison

Thanks for your reply - sorry for not responding sooner. Great advice - thank you.

Things are happening - I have had blood tests, I have MRI scan on Tuesday and although I don’t see the consultatant until May 8, I am sure it will come around quickly. Trouble is, I think I am just starting to get the feeling back in my feet and like last time, I will have no symptoms at all by the time I see him.

Do you think that matters? If the cause is likely to show on an MRI scan, will that evidence be there whether the symptoms are live or not?

Thanks again

David

Hi Alison

Thanks for your reply - sorry for not responding sooner. Great advice - thank you.

Things are happening - I have had blood tests, I have MRI scan on Tuesday and although I don’t see the consultatant until May 8, I am sure it will come around quickly. Trouble is, I think I am just starting to get the feeling back in my feet and like last time, I will have no symptoms at all by the time I see him.

Do you think that matters? If the cause is likely to show on an MRI scan, will that evidence be there whether the symptoms are live or not?

Thanks again

David

but you’ve had the MRI, thats the most important thing and what he will use to decide how to test you next, so try not to worry. He will in the mean time get to see the report, and if there is anything to worry about may bring your appointment forward.