There’s a saying amongst the MS community that is quoted often: “I have MS, MS doesn’t have me”.
if only I had a quid for every time I have heard that already rolls eyes
This time last year I was blissfully unaware of the trials and tribulations of MS sufferers, yet here i am writing this at fook o’ clock (yeah ok, 4.30am to those of you that are ‘precious’!) because thanks to MS, my stupid aching legs won’t let me sleep.
MS doesn’t have me??? - ohhhh, I think she does my friends - and the be-atch has me hook, line and sinker!
I was only diagnosed in August last year (2016) but already my MS has me in a vice-like grip with all the familiarity of a long lost school friend…
…except I’m talking 'bout the kind of ‘friend’ that you don’t remember actually being THAT friendly and was a bit of a bully on the quiet!
Yup. I have MS, and damn, does she have me: like a new best friend that I just can’t shake she follows me everywhere, messing with my brain and numbing my legs, shooting pins and needles through my hands, taunting me with memory loss and reigning searing pain through my back.
I have MS and MS has me.
I don’t like her very much.
She’s got a real nasty side.
But she’s become my new best friend and so it seems, I’m stuck with her.
So I’m going to try and get to know her, so we can ride this wave together.
The beetch has me too. Well and truly. Yes, make friends with it so you can appease the greedy so and so. But never, ever trust her. She’s the kind of friend who’d steal your boyfriend without a second thought. And ‘borrow’ your new jacket only to leave it in a club or drunkenly spill her kebab down it.
I think the best way to live with her is to drug her appropriately, give her enough attention without dwelling on her too much, try to get as fit as you can manage so she can’t get the better of you.
Unfortunately, I am a bit late to being in charge. She snuck in and took control before I was able to stop her.
The buggers, oops another 1!!! Keep your chin up girlie, my “mate” has haunted me for over 12 years, no pressies for birthdays etc, just misery!! She’s a horrible t**t as well! x
My potty gob has had negative consequences when people have heard me verbally abusing my poxy condition, I can shout / scream / swear in my head. People can not see who/what is abusing me so are confused by my gobby irritability. My MS might have a lot of control of my body but will never control how I respond, whether that is a giggle and smile or a stream of invective punctuated with shouty expletives.
I have been known to quote Winnie the Pooh… “Bother”…
xxxx