Just posting a link for my latest blog. I’m not very good at remembering to post a link, so if you like it, please have a look at some of the previous ones
Sonia x
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Really great blog Sonia! Have a good birthday,
Nina x
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Sonia I feel for you because I to struggle with friendships. People who I have known for years not visiting or phoning and it hurts. Still onwards and upwards. XXX Don
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Likewise Don and you’re so right it does hurt, I’ve had it so many times since my dx, I lived in Spain at the time. I’d become quite friendly with an English lady who worked as a private nurse out there, she called me after my appointment with the neurolagist to ask how I’d got on, I confirmed it was MS. I bumped into her the following morning coming out of the chemist as I was going in…she totally blanked me and never spoke to me again. I could only conclude she thought I might want free nursing!!
Nina x
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Thank you for such an open blog, i must be getting soft but reading it made me cry…I echo so much of what you are saying after 3 years of being in a wheelchair… you think your okay…come to terms with it ect…then it hits you like a brick. The thing iv’e found out about friends, the ones that stick by you and still make you laugh and can pick you up when you feel like your in the gutter those are the true friends…Its funny i count a couple of my Carers in that category …They’ve seen everything and they still love me and i love them and both of them i would completely trust them with anything and I never feel disabled when i’m with them. I went to Chester on the bus last week with Adelaide shes my Mon Tue Thur carer and we had a brilliant time I even forget i’m in the chair when i’m with her, and yet iv’e had good friends in the past and now struggle because they dont understand and i hate being patronised or sometimes they compare their tiredness to yours…yes i know they get tired but not to the point of having to use a wheelchair, or being told that they are no longer allowed to drive…I really grieved that one, foolishly thinking there was some sort of adaptation so i could drive again…they don’t make one for cognitive disfunction. Perhaps I can get one of those new driverless cars…I always imagine a shop manikin in the drivers seat…I’m sure we’d crash…I’d distract him!
Take Care Sonia, keep writing the blogs
Michelle and Frazer xx
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Great blog Sonia (tweeted it).
I was lucky in that my close friends didn’t desert me (dessert??). And my family have stood by me.
My main irritation is when people always say ‘Oh I get fatigue too’. I’m not sure if they are trying to make me feel better, but I always think ‘If you get this too, how come you were able to walk here and will leave here and then go and do something else…as the sheer fact that I’m sitting here talking to you will exhaust me for the rest of the day’!
Very few people actually ‘get it’ and those who do are as rare as hen’s teeth!
Which is why this board is so important!!! Everyone on here ‘gets it’!!!
Love to all. Raining in London (again).
Pat xx
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Thanks for the support on this one, I told my Mum I was writing it and when I spoke to my little sister she even said, I’m surprised Mum didn’t tell you off for waiting 3yrs
It seems like it’s been quite well received so happy about that. I think the stiff upper lip is something most of us fall back on when we need to, it’s just what we do but carrying the MonSter alone is impossible!
Thanks all, I really appreciate it , much love to all here
Sonia xx
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I often cry when I read about other people’s experiences, I don’t think we really feel it til we hear things from a different angle xx
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Brilliant blog Sonia, reading it I think to some degree we have all felt the same, and yes it is hard, really hard, and one more thing we have to deal with.
Keep on blogging Sonia, take care.
Pam x
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Thank-you for this Sonia. It captures a lot of my own feelings and experiences. And as I always say, writing it down is a good thing.
Cheers, Steve. x
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Thank you all so much. It’s been quite a popular blog and yes, I think quite a lot of us find friendships can go on all sorts of weird journeys but yes, they all change for sure.
Sonia xx
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