Hi, this is my first post here. I’m not diagnosed as yet and don’t really have any questions, but I thought I’d share my journey so far. Sorry if it’s a tad long, I’ll try to summarise.
I’ve had symptoms dating back to the 80s (I’m 55… I think). More recently though (3 years ago), I started with pins and needles which began in my feet, then hands, then all four limbs.
This went away, but then shortly after I started with constant tinnitus in my left ear (which I still have) and constant dizziness/vertigo (which is now intermittent).
I then started with left sided pain (arm, leg and face). I say pain, but it was more of an annoying achy zing. (Like when you bite foil with fillings).
I also had a recurrence of left eye pain last April. I’ve had this before but not so severe and I’ve simply put it down to needing an eye test. I went to the optician once it had calmed down, but he found no changes and also nothing untoward.
Added to this were the intermittent sharp shooting pains in my feet, hands and ribs. It was only when I started with this in my face and tongue that my gp referred me to a neurologist (end of Nov).
I am taking gabapentin which has helped with the “pains".
My symptoms now are more of a left sided numbness and eye ache.
My walking is wobbly like a cross between a bouncy castle and a disappearing leg (left side only).
I saw the neurologist last month (mid Feb). He was very thorough, but so fast, I was exhausted from him annoying every nerve in my body! I had bloods done (GP previously checked all the usual suspects), and I’m now waiting for an MRI which after chasing it up is booked for a week on Saturday. (someone didn’t pass on the referral!)
So apart from a few other minor niggles, I think that’s about it so far.
Hopefully the MRI will be informative in a good way.
And I also hope that my experiences are helpful to others in the waiting game