ive turned to this page as im starting to feel like no one is listening!
I havent been diagnosed with ms but everyday that goes on i continue to think it is and i know it can be a number of other things but i still continue to think its ms. Let me start by sharing my symptoms from start to present.
first thing was a crawling sensation in my ear which dosent go away and i still have this daily. This started the beginning of last year (2018). I was referred to ent. When I eventually when I saw ent, I was going through symptoms which have now been diagnosed as migraine related. Symptoms which started as a migraine, then i lost vision in my left eye, then had numbness in left arm. I went to a n e with a suspected stroke. They gave me a CT scan and MRI. Sending me home without nothing wrong. After this the symptoms persisted. I had waves of numbness moving all over my body, tingling, pin and needles, chills in my hands like i had electric currents running through, extreme tiredness, burning and stabbing pains. Then I got a call back from my gp that there was white matter on my MRI and I was being reffered to a neurologist. When attending my ent appointment i explained all that was going on and he came up with the diagnoses that due to all the symptoms I was having, along with the white matter that the crawling sensation in my ear is a variation on the Ihermittes sign which would suggest a diagnosis of ms. Although, when I eventually saw a neurologist I was my usual self, everything had gone back to normal and they said it was not ms, and the white matter was due to migraines.
Since this I have been checked out for thyriod problems and rheumatiod arthritis which it isnt. I noticed that when I have an on set of symptoms, its brought on through stress. Im currently on my third set of symptoms. Ive been told not to call it a ‘flare up’ because them im assuming to people that i have something wrong with me! by the stroke doctor who i saw from the start, as Ive seen him recently in a follow up appointment. In my sets of symptoms im noticing my right wrist/arm is weaker. This is started in my second set of symptoms and feels weaker into my third. Ive also had finger and leg twitching on my right side, dizzy spells, itchy skin, numbness on right side of body with migraine, pain moving all around my body, like dull aches, which is a regular thing. Electric shock feelings at the bottom of my spine. Night sweats. Pain at the top of back and down right side of neck. Random numbness and pin and needles in different parts of my face. My joints feel loose sometimes. Ive also had a swollen finger and a swollen knee.
Today I visited my doctor to be referred to a neurologist again, as thats what the stroke doctor suggested. (getting a second opinion if it carrys on) only to find that he suggested me seeking independent neurologist. My gp wont me refer me again saying youve had an MRI, and she said ‘I think its hypochondriacal’ … I will not be seeing this doctor again!!!
I seeing a rheumatogist next week on my second appointment, as there was one point where I thought it was fibromyalgia but she not convinced its that either.
Can anyone suggest what I should do next? apart from finding a new GP lol