mum won't say the ms word.

Ever since diagnosed, (two weeks ago), mum had been trying to my ms as “disease”, and “illness”, I know it’s irrational but I get really annoyed with her for not calling it " MS" after all that’s what it is. I tried taking to her, and she says if she calls it disease or the like, it makes it real. When will she realise IT IS REAL? And start confronting it face on. It’s really annoying me! Especially as I’ve been strong, and not cried, and she’s been more upset than I am. (I’m 14 btw) she thinks it is odd I’m not more upset, like there’s a “right” way to react!

ah sweetie

14 yrs old and you havent cried.

it is normal to cry when you get news like that.

do you know where your local ms centre is?

they are great places to get information, chat to others or even offload your concerns.

maybe mum would go with you.

anyway looks like you’re a fighter, watch out ms, franzbeth is coming to kick your a*se

carole x

Great attitude to have I didn’t cry either. That was until I phoned someone who had a great impact on my life. He asked the question so how have u and the baby been missed seeing you all this year at which point I started sobbing and continued to do so for the next 15 mins. Sometimes it can just hi you and make it more real. It took my mum a while to accept it even if your 14 your still and always will be your mums baby. I’ve been getting my head round it but sometimes things just trigger it off. You have a great way of dealing with things but maybe talk to your mum and tell her how you feel x

I have the same issue but with my dad, not my mum. My mum quite openly refers to it as MS but my dad calls it “the other thing”. Bless him really as he obviously can’t deal with it. X

Totally agree with Val!

I didn’t cry, and have never cried about it. I’m not saying I never will, because I’ve been pretty lucky with it so far, all things considered. But nobody should feel they’re abnormal for not crying. If it’s not your way, that’s fine. How demonstrative somebody is is not a reliable indicator of how seriously they’re taking it. And forcing tears because it’s “expected” isn’t therapeutic. They will come naturally if they’re going to, but no problem if not.

Tina

x

Hello again beth, who loves the Artic Monkeys

What are we mum’s like. My two are in their 30’s and even now they say, Mother!! stop treating us like children.

We can’t help it Beth…your mum just loves you and wants you to be well. I promise you, she does know your MS is real, just give her time.

Your have a very strong character Beth and that is excellent…you will go far in life, I’m certain

Noreen

Hi Beth Like you, your mum probably has a lot of emotions running through her head and is trying to stay strong for you. MS is something you and your mum have to come to terms with and that will take time. The only time I’ve cried has been when my mum has cried, I said to my dad will you tell mum not to cry as she makes me cry. She cries as she see it as her job as my mum to protect me and MS isn’t something she can take away . People deal with it in different ways my dads the joker always making me laugh when I can’t do something or when I’m feeling low. Give it time and I’m sure things will get better with you both. Polly x

Thank you for all the comments everyone! I feel awful for complaining, tis just annoying, however I appreciate mumma had always been emotional 'bout lots of things! I have to admit, today she is seeming to be more upfront with it! But sometimes she sorta melts down,(which is"normal" I guess) . My psychologist helps me alot as well, perhaps I should get mum to talk to her???