Well, today I finally received a letter from my neurologist regarding the MRI scan I had back in early July. What a complete waste of time. My ms nurse wrote to her back at the beginning of the month after my yearly appointment with her asking my consultant to clarify the “multiple lesions”. Anyway the letter that I received today from my consultant just says that the report from the radiographer didn’t stipulate how many or how old they were. She goes onto say that we can discuss it at my next appointment with her regarding how old any relapses and how many there has been.. and what should happen next regarding any possible treatment..scheduled for February 2026 although I haven’t got an actual date as yet. Isn’t it her job to tell me how many and how old any new lesions are? And how are we going to be able to discuss anything if she doesn’t know anything about the lesions currently on my brain? A chocolate teapot would be a kind way to describe her. We know that it’s a postcode lottery..at least we’re told that but, surely it’s basic stuff in finding out from the radiographer how many new lesions and how old that they!
Oh how frustrating Freshairman! Surely the neurologist can have a look at your scan and tell you what they see??
And it seems a long time to wait til February when you see them next. I wonder if there’s a way of bringing it forward?
How is your referral to Addenbrookes going? X
Thanks Alison. Yes, it’s frustrating and I found it disappointing too. Like yourself I would have thought that she would have had a look at the scan herself. Obviously I expect too much of her, for that to happen!
Well, as far as I know, my GP..or at least the GP I saw at my GP’s surgery, has written a referral to Addenbrookes. Haven’t heard anything as yet. Who knows, maybe I’ll get an appointment there before I’m due to meet my current neurologist next February. Oh, I do hope so.
I hope so too Freshairman. The not knowing can be so hard. And it seems to be a big feature of most people’s MS journey!