Hello, this is my first post on this forum (on any forum actually) I don’t want to waste anyone’s time but would appreciate a view from someone else.
Several years ago I was told I had Fibromyalgia. I had presented with multiple joint pain, general tiredness and a host of other symptoms over time. I was given a leaflet and having read it thought “yes, this is what I have”. Over time symptoms have come and gone, sometimes worse than others. After a particularly troublesome time with my shoulder joints (couldn’t raise my arms with weakness/pain) an x-ray showed osteo-arthritis around my collar bone.
Over the last few months I’ve had a couple of falls/trips. My husband says one minute I was there, next I was on the floor. I don’t recall tripping over something - I just seemed to fall. The pain and weakness in my upper legs has got worse. The tiredness has got worse - I liken it to someone having pulled out my power chord. The onset feels immediate.
I went to the docs (have recently changed surgery) and said how can I feel this bad and it be nothing serious. He asked a few questions - any problems with my eyesight? My eyesight seems to be deteriorating but sometimes is worse than others …he asked had I had any loss of vision - I replied no, well except for that time a few years back where I lost sight in one eye for several hours. At the time neither GP or optician seemed to worried as sight has returned - and this problem has not recurred since. We talked about the muscle pain - how after walking a short distance (mile or two at most) I have to lift my legs into the car as they don’t have the strength to do it themselves (that’s a hard one to describe - does it make sense to anyone?). I have the usual tingling and numbness in my hands which I have always put down to sleeping funny. I have patches on my back and legs with no feeling at all (i can’t feel hot water on my lower legs/feet so have to be careful with bath water temperature) - the numbness on my back I have had for years, the legs are a more recent thing. If I get warm (hot shower or standing in sunlight) I feel horribly itchy. Its a whole bunch of werid stuff.
So, GP sent me for an MRI can of my head only - not my spine and now I wait the results which I get from him at an appointment in 7 days time. I am 53. So, I guess the views I would appreciate are? Is it possible I have MS? Is it possible I have had it for some time and my symptoms have been dismissed as something else? Was it right to be referred for a brain scan only and not spine? Are my questions stupid?
This has been a long first post - I am sorry. I haven’t spoken about this with anyone other than my husband and would appreciate mulling it over with someone else. Thank you.