I’m new to this forum, and am looking for advice. I have been ill for many years with a collection of different symptoms, resulting in diagnoses of ME and Fibromyalgia. However, I have always felt that not everything fits neatly into either or both of these conditions, and as things have progressed and then taken a turn for the worse over the past 9 months, I have become increasingly concerned that I have many signs of MS.
I have recently been investigated by ENT for balance/vertigo issues, but they confirmed that I do not have an inner ear problem.
I have also recently had a brain MRI which showed “multiple small white matter lesions” all over my brain. I am waiting to see a Neurologist.
I hope you don’t mind if I list my main symptoms below, and would welcome any comments/advice:
Major balance issues/dizziness (constant, made worse by physical or mental exertion)…can’t stand unaided and can’t walk more than a few steps without holding on to someone for support, as will stagger and stumble due to imbalance
Constant fatigue, not improved with sleep or rest
Stiffness and pain in fingers, back, neck, knees, ankles, feet, shoulders, elbows
Headaches and tingling/numbness in head and face
Blurred vision and pain in one eye, sometimes ‘wiggly’ vision (eyesight originally deteriorated rapidly about 6 years ago and was told my eyes weren’t focussing together properly)
Very ‘heavy’ legs and arms, sometimes don’t feel as if have full control over them
Trembling feeling in whole body, causing hands to sometimes tremble involuntarily
Occasional weird feeling in arm or leg muscles making me want to ‘jerk’ my limbs or move them in a weird way (very difficult to describe, although I can override these movements if I concentrate)
Cognitive problems - short term memory issues, word recall issues, difficulty concentrating, finding it difficult to articulate etc
I’m sure there are other things, but I’m sure that’s enough to be going on with!
Any comments would be really appreciated, as I am working myself up into a mini-frenzy at the moment!