Please join us for two hours of friendly chat between MSers and Carers http://www.ms-uk.org/index.cfm/chatroom
… 10am - Noon today! All welcome
Hi Andrew, hope Ben`s advice was helpful.
Incase you havent posted a new thread, let me reply here.
Living with chronic illness/disability, take some doing. I know, as I have lived with it for going on 20 years.
A lot of the members here have also battled for years.
But somehow we manage to keep going…even through the darkest times when we feel we have no more to give.
But having a rant here can often help us make it to another day, week or year!
Another helpful thing is to have a good network of support around you.
This can be made up of health professionals ie nurses, GPs, neuros, physios and then your family and friends.
Are you on helpful medication? If you`re not sure, then have a chat with your GP , MS Nurse or neuro.
We`ll do our best to support you too.
luv Pollsx
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Hi I’m new to this site I’m in Shropshire U.K. Looking for others to ms chat Please say hi ))
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Hi Honey,
You’ve tagged this on to a very old post. Best idea is to start a new thread. On Everyday living opening page.
Above the page numbers is NEW THREAD.
Put a post maybe with a title ’ I’m new ’ and a little bit about yourself.
Presume you have a diagnosis of MS which I’m sorry about that but welcome to the site. Lots of advice and support here. Also fun and laughter.
Keep well
Jen
Hey my name is Martin am new to this is there anyone out there up for a chat?
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Hi Martin, Welcome to the Forum. You’re not going to get much of a response unless you have a specific question or point you want to make. What’s your story? Regards, Anthony
Hi, my name is Sue, I’m interested to know if anyone out there has used the XFT 2001D Foot Drop System, if so I’d love to know how you got on with it. Thanks
Hello Sue
You’ve joined your post onto an old thread, so the chances of getting any useful or relevant replies are less likely that if you started your own topic.
What you do is hit the box marked ‘New Thread’, give your thread a title, then post your query.
I don’t have any experience of that type of FES (I use an Odstock Pace).
But welcome to the forum anyway. You’ll soon get used to how it all works.
Sue
I have been diagnosed since 1999 I have been on fluoxetine for the last 8 years but these past 2 weeks I have been very down and weepy
Hello Angela
You’ve joined your post onto an old thread, so the chances of getting any useful or relevant replies are less likely than if you started your own topic.
What you do is hit the box marked ‘New Thread’, give your thread a title, then post your query.
With regard to your current emotional state, perhaps you need to talk to your GP. If the Fluoxetine isn’t doing as it should, then maybe your doctor could help you find some resolution to your depression. 8 years seems to be a long time on a drug, and if it’s not doing it’s job anymore, then finding another solution would be good for you. Many people have found that Cognitive Behavioural Therapy (CBT) works better than drugs.
But welcome to the forum anyway. You’ll soon get used to how it all works.
Sue
Depression and ms I have been diagnosed 19 yrs and been on fluoxetine for 8 years but been depressed and crying for the last 2 weeks any advice please
Just to say I’ve gone for the XFT-2000D Foot Drop system. I’m really pleased with it, the end result is pretty much the same as the NHS Odstock I have, but the huge plus is the simplicity of it, it takes me no time at all, less than a minute to put on, just a cuff below my knee, the electrodes are automatically in place, switch on the Bluetooth remote control…and ‘bobs your uncle!’…worth every penny.
Hi I am new here too xx
Hi Angela,
You really should see your GP. You may need another medication or a different treatment altogether.
Best wishes,
Anthony
Maybe you could think about calling the MSS Helpline, the number is 0808 800 8000. Unfortunately they only have a service available on weekdays.
But it does sound like you could do with some more help than we can give you.
Obviously, you could try for an appointment with your GP on Monday. But if you really feel so very down in the meantime, you could always phone the Samaritans for a comforting ear. Their number is 116 123.
If you are spending all of your time dwelling on your problems, sometimes all you need is another person to listen to you.
Sue
Hi
Has anyone had a bad reaction to Daclizumab? Withdrawn in March, my partner is now in intensive care following a brain seizure and positive NMDA receptor encephilitus diagnosis. He has none of the obvious markers, a tumor or infection and statistically is not female or young. But he was taken off the above drug in March following a series of bad reactions including NMDA and seizures. Just trying to find anyone else who may experienced the same.
please do respond. With thanks
I’m Ted to everyone who knows me. Andrew to mom. RRMS 3 long years. Diagnosed at 48. It’s real now. Big relapse 18 months ago stopped me. But I’m fighting. Problem is wife and 3 daughters. Wife is the love of my life. In last 12 months I’ve seemed to shrink in her eyes. 50 I was her ‘best friend’ in card. 51 I was just… She says the loves me-but actions don’t. Thought I could be honest with her-scared too now.
hiya
this is a very old thread about a chat room that no longer exists.
you would be better to start your own new thread as that may promote replies.
ellie
Ok. I wish you well
What happened to the chat room which the old MS site had, it operated 24/7, I made friends worldwide as people from Australia,America would join in discussions on topics. That was 10 or so years ago I still keep in contact via
email with the folk I met through it.