Forum

MS Trigger?

So been doing some research and had a look at Google that certain contraception can trigger MS as my issues only appeared after I stopped it I am now wondering if it’s true seems like it works in with the time frame. Strange but read some posts on it earlier.

Hiya this is taken from the MS Trust Website a reliable source as is this website :wink: A to Z of MS Contraception Multuiple sclerosis has no direct effect on fertility, which means that anyone with MS has as good a chance of conceiving with their partner as they would have had if they did not have MS. Choice of contraception may however be influenced by MS symptoms and treatments. Oral Some drugs used in the treatment of MS symptoms, including antibiotics, modafinil, phenytoin and carbamazepine, may reduce the effect of oral contraceptives. People with limited mobility may need extra monitoring as the risk of blood clots occurring in the veins in the legs could be increased. Barrier Good manual dexterity is needed for the use of barrier contraceptives. There is some evidence that antibiotic or immunosuppressive drugs may reduce the effectiveness of Inter Uterine Devices (IUDs). Oral contraceptives, the risk of developing MS and impact on progression Multiple sclerosis is more frequent in women than men and researchers compared the medical records of 106 women with MS with those of 1,001 women who had not developed MS. They found that women who had used oral contraceptives in the previous three years were 40% less likely to develop MS than those who had not. They also found that the risk of developing MS increased in the six months following pregnancy, but was not otherwise related to bearing children. The researchers conclude that the hormonal changes that occur whilst using oral contraceptives and in pregnancy may reduce the risk of MS in the short-term, and that the period immediately following childbirth may be associated with a short-term increase in the risk of developing MS. The authors draw attention to other factors that may have influenced the results, such as a pregnancy during the follow-up period or whether those using the pill were ‘healthy’ individuals (eg not smokers or overweight), but feel that the study demonstrates the need for more research into the link between hormones and MS. In a subsequent review comparing results from several studies, the same researchers concluded that oral contraceptives did not affect the risk of developing MS but could delay the onset of multiple sclerosis. There remains scant information on the impact of oral contraceptive use on the prognosis of MS. Recent studies suggest that oral contraceptive use in women with relapsing-remitting MS is possibly associated with a milder disabling disease course whilst in progressive onset MS, a more rapid progression occurred when women reported the use of oral contraceptives. References Alonso, A et al. Recent use of oral contraceptives and the risk of multiple sclerosis. Archives of Neurology 2005;62(9):1362-1365. abstract Alvaro A, et al. Oral contraceptives and the risk of multiple sclerosis: A review of the epidemiologic evidence. Journal of Neurological Sciences 2009;286:73-75. abstract Sena A, et al. Oral contraceptive use and clinical outcomes in patients with multiple sclerosis. Journal of Neurological Sciences 2012;317(1-2):47-51. abstract D’hooghe MB, et al. Menarche, oral contraceptives, pregnancy and progression of disability in relapsing onset and progressive onset multiple sclerosis. Journal of Neurology 2012;259(5):855-861. abstract

After having my daughter 9 years ago I went on depo-povera had it then stopped it 24 months ago it took like 15 months for my periods to return and I lost 3 stone in weight too, I read that this pill has substances in it that can trigger MS, makes sense why mines progressing fast. Soon to be dx LP in 2 weeks eek.

Alysea, please don’t blame yourself for anything you’ve done that you believe has “caused” MS. The NICE guidelines actually say that at diagnosis, you should be told it’s nothing you’ve done, because many patients understandably worry about this, but there is no sound medical evidence it’s a “lifestyle” illness. The only factors that have pretty strong medical evidence of some connection are smoking, and low vitamin D - the latter usually a function of where the person has lived. In general, countries further from the equator have higher rates of MS, probably reflecting that there’s insufficient sunshine to make enough natural vitamin D.

But even these things are not causes by themselves, just small pieces of a complex puzzle. Millions of people smoke, but don’t get MS, whereas others who have never smoked still get it. And some estimates suggest most people in the UK don’t get enough vitamin D, but only a tiny fraction of them (about 1 in 1000) get MS. So obviously it’s not a problem unless there was already something else wrong - an underlying susceptibility.

The same with any kind of contraceptive. Millions of women use them, so if it was a significant contributory factor to MS, we’d see rates a lot higher that they are. All of us who get MS would like to know the reason why, but in years of research, there’s been nothing to suggest it’s something we’ve caused ourselves.

Tina

x

Thanks Tina x I quit smoking over 7 years ago so I don’t believe that’s the issue and I guess I feel bad cause I’ve become disabled pretty bad over the year and I don’t drive, I wanted to learn but cause of my vision I can’t :frowning: Just would like to be able to take my daughter places but since like this I can’t do much with her not even take her to school walking is a major issue, my mum helps me but she thinks it’s a shame on her and I do too just did not think in a million years I would get ill. I’ve basically accepted I have it LP and VEP test due on 8th July all on same day I have a swift neuro he’s been very fast with tests and a MS specialist just wish I could do more.