New to here - not yet diagnosed.
This is going to be quite long so apologies…
Back in November i suddenly had vertigo - and over approx 5 seems it came and went several times. Doc thought it was a form of labyrinthitis but as I was getting very worried (my brother passed away due to brain cancer 5 years ago) he said he would send me for c t scan to put my mind at rest. I was immediately on high alert from that moment so have been very 'Stressed ’ since the referral was made. My symptoms settled but had head pressure, neck stiffness ect so only felt totally normal for a few days.
C. t scan was in Jan and got phone call 2 days later from doctor to say something had shown up (as you can imagine I was completely freaked out and went into panic mode). Doc ordered MRI and I went to see my doc to discuss and turned out they thought I had had a stroke (my other brother had a stroke at 36 but I was actually relieved at this suggestion).
Saw TIA consultant and he was ok - needed to go back after MRI. Also saw audiologist and she thought my symptoms could have been form of labyrythitis.
Went to see TIA consultant too soon after MRI (it was date that was sent to me!) and he could see MRI but not had MRI consultants report… I could see the white dot and he said I think you have a cyst as it is very light, symmetrical and like a blob. I went into panic mode again! He phoned next night having spoken to MRI consultant and I needed contrast - which happened the next working day. 3 days later he had report and 2 more small areas (lesions?) Had shown up in contrast so was referred to Neuro oncology surgery - they had a MDT meeting and discharged me for now to be referred to a neurologist and Rescan 12 weeks. They suggested either Glioma or Neuro inflammatory. TIA consultant also requested body CT before the MDT meeting had happened ( apparently procedure as more than one area?).
Had neurologist meeting on Friday - told her all my symptoms (had pins and needles in hand 3 years ago for approx 6 weeks, have been experiencing muscle twitches for a couple of months - random places, have strange ‘sudden itches’ that then get a kind of ‘current’ if I don’t itch quickly? have weird head feeling a little bit dizzy\spaced out but I did say this was worse night before so wasn’t sure if it was anxiety? Not sure as been in a state of anxiety since all of this happened?!).
She has ordered more blood tests and spine MRI as well as head. She was very on the fence (her words) as some things point to one and some to the other.
I am not looking for anyone to diagnose me but would just like to know if anyone else had a similar experience before diagnosis? My worst fear is the T word.
Sorry the post was so long!
Many thanks E x