Hi all, I’m new to the forums and have found this board really comforting, as in I’m not alone with my situation. Sorry if this post gets quite long but I’m prone to waffling and not always very good at saying what I want to in few words. Thank you in advance if you get to the end
In November I randomly woke up with vertigo. The only other time I’ve had this was with a deep inner ear infection so following a feeling of fullness and fatigue I went to my gp. To cut a long story short they couldn’t find anything but I was given antibiotics due to the continued pain which had spread to both my upper and lower jaw by this point. I also had a dental x day during this time which was clear. A few days later I had nerve pain not only i my face but up my head as well. It was only on my right side and I could more or less map my nerve pathways the pains were so intense and specific. I was diagnosed with trigeminal neuralgia and a few days later it disappeared just as mysteriously as it had arrived.
Six weeks later I awoke with vertigo again. I went back to my go as I was struggling to continue as normal it was so bad and was given prochloperazine? to help. It did help after upping my dose and finally after a week it went away again. A week or two later I developed a random itch on my hip area and forearm. It went away a day or two later but the area on my hip is now still numb weeks later (the arm area felt like I had sunburn under the skin for a few days recently but now seems back to normal). After another period of normality for 5/6 weeks the vertigo returned. This time I woke up with a stiff neck and thought I’d slept funny. I went to empty a mop bucket in my toilet and nearly ended up in there head first myself so I went back to the gp where this time she did a balance test (can’t remember the name) and she had to stop me from falling over. She referred me for an x ray of my neck in case it was disk related, x ray was all clear. A few days later my left arm started feeling tingly it then spread down to my left leg. I was also having some blurred vision and sometimes ghosting too. I went back again and this time saw a different doctor. She did some sight tests and reflexes. My knees in particular were very slow and the left had to be attempted a couple of times to get any response. Following this and my recent bouts of vertigo and trigeminal neuralgia she referred me to neurology. She said that she had concerns regarding MS.In the meantime the tingling spread to my right leg also and my left arm and let became really weak (i was having to leave cards on the full in shops because I couldn’t hold more than 1/2 for any length of time) so I rang to find out the waiting list for neurology. I was told 9 months so I started to find out about private appointments. I had bloods scheduled at my GPS anyway so I spoke with her regarding the waiting list and possibly an m ri inbetween. I’ve been lucky that my gp is sympathetic and has requested both a brain and spinal mri in the interim as she had marked my referral as urgent and was surprised I’d therefore have to wait 9 months.
That leads up to today where I am awaiting an mri and questioning possible MS. I already have a diagnosis of Fibromyalgia and it makes me wonder if I have both or if I’ve previously been misdiagnosed. I have had tingling and numbness in my left arm before as well as a large area on my torso that again felt like sunburn under the skin. I’ve also had feelings like insects crawling on my legs or water running down them and always attributed this to the fibro. One thing I’m wondering is are my recent bouts of symptoms too close together for something like MS? I also thought reflexes were normally hyper with ms as opposed to slow or missing? Any replies gratefully received and thank you if you got this far