Sorry for posting this, I have been lingering around the forum and thought it was time to ask everyone’s opinion.
Over the last three years I have had sporadic joint stiffness, dizziness and eye problems which was put down to low vitamin d. I have thought nothing more of it until a few months ago when the it happened again. I was tested for rheumatoid arthritis and diabetes all of which came back fine.
This time my eye sight in one eye deteriorated and was painful to move. Random pins, needles and burning down the right side of my body along with dizziness. One day I was in a meeting and thought i was having a stroke because I couldn’t speak but this was only for a few minutes. These symptoms subsided but now I have weakness in my arm and leg to the point im struggling to walk for more than 5 minutes or use my right hand for few minutes until it either goes numb or the muscles go tight. I’ve also had some cramping in my foot if I’ve pushed through. Its not really painful just more uncomfortable and exhausted (a ten minute work knackers me out now!)
The GP is referring me to a clinic for further tests as she said she doubts its vitamin d and may be a trapped nerve or autoimmune. A friend said it sounds like MS which led me to this site. I agree but don’t know if I am being paranoid or making symptoms fit.
Does this sound like MS or something else someone has come across?
I agree with your friend. although you need the ‘typical’ 3 MS-tests for clarification. I recognize especially the deterioration in one eye for a short week (a grey fog) and not being able to speak while on the phone at some point, this next to ‘pins and needles’ in my legs on and off. Are you paranoid?..no, although tests might not be conclusive just yet? I was only officially diagnosed 15-25 years later since the eye/pins and needles issues occurred, and that short moment of not being able to speak happened around 5 years before the official diagnosis in 2003 (and I went from RR through to SP and now PP very quickly!). Still, although I have not worked anymore for many years, mainly caused by fatigue btw, ‘my’ MS does not seem to be as aggressive as some other cases I read about… Anyway, worry about loo rolls and hand soap first…
I just been to town and the liquid anti bacterial soap has run out in all the shops! I had run out at home and just wanted to get another bottle. I had to get fragranced liquid soap instead. The loo rolls are running out as well!
The only way you will really find out is when you have had the tests. I started off with pins and needles in my fingers and the shakes. My doctor originally thought I had got a trapped nerve in my neck. The symptoms that you have talked about sound like they could be ms but like I said you won’t really know what it is until you have had the tests.
Thanks guys sorry I lost my login for awhile so was unable to respond. I went for my assessment where I was told it isn’t a trapped nerve and they said they think it could be early ms. I’m now being referred to neuro. Has anyone else has a similar expe it ace? Alittle bit lost with all this so all input welcomed.
We’re all with you and know exactly how you’re feeling! That strange, overcrowded but friendly place called Limbo is a place we’ve all visited-many many times! Unfortunately MS is an expert at hiding, throwing curved balls and mimicking many other diseases and problems! From everything I’ve learnt, very often it diagnoses itself after practically everything else that is far easier to diagnose is ruled out-hence the long wait for diagnosis!
Patience is the one word you’ll hear again and again and I absolutely understand that, when you’re going through such scary times when your body is totally out of control, it’s very hard to be patient! BEWARE dr google-it’ll literally frighten you witless and anxiety will throw up all sorts of symptoms that will mimic anything from migraines to Ebola!
Finally, having been a carer for my husband with SPMS for 4 years but lived with the symptoms for at least 16 years-probably more, I can say that diagnosis and treatment has come on in leaps and bounds and, there will be challenges but you can still have a good, fulfilling life!
Believe me, there are far worse diseases you could have that get far less funding and support! This excellent charity and forum are proof of that!
I’ve worked very hard to follow the I’ll cross that bridge when I come to it, one day at a time system. It works most of the time and when it doesn’t there’s always this excellent forum! We’re all here to listen, try and give good, sensible advice and a huge hug! Xx
I’ve had m.s. symptoms for a few years now and has gotten worse over time. Spinal clinic referred me to Neuro stating that my discs not the cause of the weakness and mobility issues . Now had all m.s. test come back clear although told at the time that my brain lesions were demylination. Degenerative disc disease is the likely cause. I have disc problems in neck middle back and lumbar . But finding it difficult to take in after so long being told m.s. I found this out last week when my follow up appointment was by phone (due to covid-19). Struggled to take in all the jargon she was telling me. So when her report arrives will go back to Doctors and back to spinal clinic I suppose. Although I could be back here in a years time after going round in circles. Anyway beer in fridge cooling. Stay safe everyone Wilma