‘I told my MS nurse to ask for more help and additional staff, not to make me suffer’
the above sentence had me in tears for which i make no apology. i gave over 12 years of my life as a staff nurse in the nhs. i remain friends with many who are currently struggling on many different levels.
there is no cure in any country. and there wont be in my lifetime.
the nhs is broken beyond repair and i dont have the answers. some things that i do know-many staff are seeking early retirement, many are off on long term sick, recruitment is extremely hard. we have an mri machine but its not being used but why? cos theres no staff to operate it so a 160 round trip is required. local hospice is not taking new patients for 3 months cos theres no consultant to oversee.
when you asked your nurse the question i would guess it broke her heart (purely supposing on my part, i am awareof that) because she knows theres no-one else to support her and shes trying her darnest to support you. all this whilst putting her own worries to the side in order to support you and earn a wage for herself (whilst dealing with her own kids/parents/friends etc)
i know work is work and be professional etc but we are all human-not robots (yet!)
when you said about not to make you suffer. i am, sorry but most people are suffering on a variety of levels. we can listen and support (and be supported) but ultimately its down to us.
dont go back in your box, you are not a pest. you are a unique human finding your way through life-just like us all. and thank you for giving me the chance to get some of my thoughts out.