Hi Mr Wobbly and a big welcome to the gang! You’ve found the best place for advice, support and friendship.
Hug is hell… but it does go again. My last episode lasted about 2 days but since then I’ve only had a couple of episodes lasting no more than an hour. Have you tried Baclofen for them? And I’ve found a couple ibuprofin can help too… esp for the milder hug. Seems to be a huge variety of hugs… even the one-sided one! I get that quite often.
If you want to start a thread, just click on ‘new thread’, put in a title and away you go!
Great to have you with us. Hope you’re coping ok with the diagnosis. It takes a while to get your head round it… and just when you think you’ve accepted it you have a ‘OMG I’ve got MS’ moment!
There’s a general belief that PPMS is the worst type of MS (by those who know about ‘types’ and that’s not many people!) but that isn’t necessarily true. For many of us it progresses slowly and aggressive RRMS can be worse.
Hope you’re doing ok. Ask us anything! Nothing is taboo and between us we know just about everything there is to know about PPMS! (and as I’m sure you’ve noticed, we don’t just stick to MS… pets, chocolate, TV & politics are favourites too!).