MS HUG or not the MS HUG

For several months i have been in the worse pain ever with my PPMS, the pain around my ribs ugh. I would end up crying in bed at night wanting to die it was so bad.

i managed to get a phone call appointment with my neurologist who said yes it was MS hug classic and can be very painful, i think i will tell your doctor to put you on diazepam higher dose. Anyway my doctor decided to do some blood tests for a change and found my anemia without cause was worse, next thing i know is i am having an urgent endodscopy within 2 weeks.

well well well…….guess what.

MS HUG not a chance i had a huge crater dudenal ulcer which they couldnt mess with so had to remove the wire and camera in case it burst.

so i am on lots of meds to try and heal it and the pain is GONE after 2 weeks. I have another endoscopy on the 14th to see if it is healing.

So just be reminded that not everything is down to our MS, in fact i could have died if i had kept ignoring it.

HAPPY EASTER.

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Wow, that sounds awful - thank god your doctor is on the ball and, you’re feeling better x

My MS journey has only just started so your post is a good nudge to not write everything off to my new diagnosis.

Good luck with your next check up :crossed_fingers:

Jon.

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Hi @Crazy_Chick OMG, what a time you’ve had, thank goodness your GP was on the ball, my GP has always said to me “don’t put everything down to MS”
I’m so glad you seem to getting over it, I :folded_hands: on your next endoscopy it’s gone.
Take care, Jean x

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YES Jan not everything is our MS it happens a lot not just to me. my friend sadly thought she had a bad back and was in agony after a few months i forced her to go to doctor. After an MRI sadly they found she had terminal cancer in her spine. Another one had pain in her shoulder blade and neck told her RRMS, NOPE GALLBLADDER STONE.

SO you have to try and devide what could be MS and what could be something else.
have you got PPMS? It tends to be more more waist down. i hope your journey isnt too hard on you. i have been ok mostly started around 2000.
So my advise is keep moving, eat well, and just have the best life you can. xxxx

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thank you fingers crossed the tablets are healing it, i will know on the 14th. but my MS nurse came today to talk about meds for my MS hug LOL UNTIL I SHOWED HER the report what a hoot, boy did she get a shock lol.

me an ulcer seriously i dont smoke, drink and i eat super healthy. makes you wonder what the point is lol. xxxx thank you for caring. xxx

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Hi CC no, I’ve got RRMS - still fairly recently diagnosed so, I am trying to adapt to it now. I think I’ve got it a little figured out so far. I’ve got a blood test and a meeting for DMT choice coming up soon. I’ve never been one to panic over things but, my missus and our daughter don’t let me get away the ol’ ‘It’ll be ok, let’s wait a while’ any longer(there’s a whole other story behind that):smiley:

I hope you’re all set up for a good Easter x

Jon.

Good grief! I am so glad that you’ve got rid of the pain. A cautionary tale indeed - thank you for sharing and get well soon.

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