So I am concerned I have MS. I know there are so many diseases that share extremely similar symptoms and have researched them all extensively (Dr Google is always a bad idea I know but once you start you cant stop). I even convinced myself it was just fibromyalgia at one point as the symptoms are so similar and of course that is a much better prognosis. However there are certain things that make me convinced it is actually MS. I know nobody can tell me for sure, but It would be helpful to know your thoughts on whether it sounds like MS as i can’t talk to my family about it - my parents think it’s in my head.
So for a few months now I’ve had tingling / pins and needles mostly in my arms and legs / hands and feet multiple times a day but i have experienced it in other places such as the back and head, though not often. When i first started experiencing this i was on a mediation that could cause tingling in the hands and feet, however i have been off this now for months and am still experiencing it but not in the same way. When I was on the medication my legs would just start tingling randomly for a few minutes and then go away but this would happen a lot of times throughout the day. Now, it is more when i am resting on a limb even for a short amount of time, so I will lean on my arm for hardly any time at all and i will get pins and needles and then numbness, sometimes my leg will do the same but when I’m not even leant on it. I also seem to experience it a lot when I’m sat on the toilet (weird I know it must be to do with the way I’m sat), my buttox and whole leg will get pins and needles, and sometimes go numb but not to the point i cant walk on it.
The other main thing is a tremor, it’s very mild at this point, but it is one of the things that has convinced me this is MS as it appears to me that it’s an intention tremor, so when I move my hand. I also get a tremor in my leg, especially if i lift just the heels of my feet up, my legs will start to shake (not sure if this is tremor or weakness?)
Another thing is double vision, it is also quite mild as it’s only when i look to the side, however it goes away completely if i shut one eye and i have had my eyes checked in regards to this so I know it isn’t an eye problem, so is most likely a brain problem.
I have a few tension headaches throughout the day as well as tinnitus (ringing in my ears and muted hearing for a few seconds). Sometimes the ringing is quite loud and very distracting. (I know the headaches could be the stress as they are relatively new compared to my other symptoms but still feel it’s worth pointing out)
I have also have issues with urinary incontinence, I am fairly sure it is overflow incontinence based on my symptoms (leakage throughout the day without knowing, stopping and starting flow, short flow etc) and my gp has referred me to get an ultrasound to check this out. I know this type of incontinence is associated with MS (there are a few other causes but they don’t make sense for me eg enlarged prostate (I’m a woman). I’d also like to say I seem to remember having this for years but as I’ve had it so long i always ignored it and thought nothing of it, so it isn’t a UTI, or something short term like a blockage.
I also have noticed i start coughing after i eat, like a chesty cough but i’ll just cough a couple times then be fine. It doesn’t feel like anything is stuck but I know this can be a symptom of Dysphagia.
I also get muscle spasms/twitches throughout the day.
I was getting a lot of back, arm and leg pain which was quite bad for a few months but that has recently cleared up for the most part, but if i walk a long way i start to feel it. This was one of my first symptoms along with the tingling.
So, my main concern here is PPMS. I know it’s a very difficult and lengthy diagnosis, but I also know this sounds nothing like RRMS and a lot of my symptoms sound like PPMS symptoms to me. The thing is I am only 21 so I know it us very uncommon to have it as this age but it does sound like it to me and I am terrified of having ppms so young, of course it is never an easy thing to have but from what i’ve seen people that are diagnosed at an early age seem to progress quicker / in a more disabling way and i seem to have a lot of symptoms so it worries me even more that I’m not going to be able to speak / walk or do anything really in a few years.
So I suppose my main questions are,I appreciate you are not professionals and obviously can not tell me for sure but from your experience / from what you have seen do you think this sounds like PPMS? Is there any way this could be RRMS (it really doesn’t look like it to me but I’m hoping) and do you know if the outcome generally worse for PPMS if you are diagnosed at this age?
I know this is so long and I’m sorry thank you if you took the time out to read all of this i really appreciate it!!