MRI results!

Received a letter from my neurologist today, doesn’t say much but says your recent MRI has shown some areas of inflammation. As discussed he wants to go ahead and proceed to further tests to confirm inflammation in the nervous system and this will mainly involve a lumbar puncture :frowning: He will also perform a visual evoked response for information of the optic nerves. Not sure if inflammation means I have ms or not worried about lunar puncture eek :frowning:

As I understand, inflammation could be caused by a number of conditions. You will need your neuro to explain what your scan shows and what that means for you - hopefully you have or will soon get a follow-up appointment with him.

The evoked potential test is painless and absolutely nothing to worry about. The lumbar puncture itself was no real problem: you get a local anaesthetic before they start so it shouldn’t hurt, although mine was a little uncomfortable. I got the headache the day after, but there has been some advice posted about how to avoid it. I wish I’d been given that advice before my LP.

Best wishes.

Thank you, i expected a follow up appointment but nothing yet i guess i have to wait and see i see eye specialist monday so ill see wjat he has to say.

Thanks.

Don’t worry too much about the LP. I had one a month or so ago and it really want painful!!

Not worried too much just worried about after it’s done lol x

Hi Alysea,

When I had my lumber puncture iwas told to drink lots of coffee the caffine stops you having a headache. It actually worked as I did not have any headache.

Also you must remember to do everything the doctors and nurses tell you that will prevent you from having ang problems or headaches.

Robert xx.

Hi Alysea,

When I had my lumber puncture iwas told to drink lots of coffee the caffine stops you having a headache. It actually worked as I did not have any headache.

Also you must remember to do everything the doctors and nurses tell you that will prevent you from having ang problems or headaches.

Robert xx.

Not much of a coffee drinker I drink tea and water I try not to drink at all when I go hospital due to bladder problems thanks though appreciate it :slight_smile:

Hello Alysea

My lumbar puncture went very well, the doc was excellent. Enjoyed a lovely cuppa tea and biscuits and a two hour rest before being allowed home.

They only advice I would give, is make sure the doc is competent and don’t under any circumstances allow a student doctor to practice on you…they have dummies for that

xx

Haha thanks blossom no way is a student touching me but resting for 2 hrs not sure if I could handle that hospital’s make me feel sick happens when I see eye specialist too hehe. I managed a hour in MRI I’m sure I’ll be fine. Thanks all for replies x

Hi Alysea

I was pretty nervous about having the lumbar puncture. I think it was just the thought more than anything else. Unfortunately it was a trainee doctor and it was not a good experience. Like Blossom says dont let them near you. After several attempts, she gave up and got an experienced doctor to carry out the proceedure. I can honestly say, that after that, it was totally painless. Good Luck, you will be fine x

Yeah I’m not a fan of needles but rather have someone experienced doing it then some trainee. Thanks all x

Hi their Alysea,

I was living in Germany when I had my LP carried out. It was quite a funny experience when I reflect back on it now I remember german nurses trying to explain in as best english as they could that I needed to ‘bend over like a cat’ … hilarious this german nurse bending over pretending to be a cat… but on a more serious note… It was I cant deny uncomfortable but not as painful as I suspected it would be. And … Please try to lay down as rest As much as you can as I ended up returning to the hospital the very next day and having to stay in longer due to the headache, i’ve never had pain quite like that.

I wish all the best.