Just had a letter from neuro confirming that my MRI confirms the presence of lesions within my brain & spinal cord which seem likely to indicate a diagnosis of ms. 
I’ve been back at work for a week now and have seen drastic improvements in my symptoms, but seeing it in black & white has left me feeling really deflated. I really thought I’d got used to the idea of living with this, life is nearly back to normal and I’ve even started jogging again which is great as 4 weeks ago I could barely walk in a straight line! I know I should be thankful as many people are affected much worse by this condition but I’m just struggling to get my head round it all. I’m seeing him in 4 weeks for a review - last time I saw him he mentioned tysabri so I’m assuming he’ll discuss that with me then… it must be RRMS as we identified 3 relapses within the last 12 months. Sorry - just came on here to moan, I often visit the forums just to compare people’s experiences and it really helps. xx
Sorry to hear you are as good as dx.
At least by starting treatment you can put the reins on your MonSter.
As you are obviously out of relapse if you can start treatment soon it may be the last relapse for a long time so you can continue with your life as its always been.
Its never moaning on here its just sharing where you are at and how you are feeling. You are feeling good,working,and jogging and in your heart know you have ms…well the ms hasnt got you because you are back to your normal activities …so well done you.
Pip
[quote=“pip”]
Sorry to hear you are as good as dx.
At least by starting treatment you can put the reins on your MonSter.
As you are obviously out of relapse if you can start treatment soon it may be the last relapse for a long time so you can continue with your life as its always been.
Its never moaning on here its just sharing where you are at and how you are feeling. You are feeling good,working,and jogging and in your heart know you have ms…well the ms hasnt got you because you are back to your normal activities …so well done you.
Pip
[/quote] Thanks Pip - you’re right - at the moment I have ms but it doesn’t have me!!
It does sound like the first thing that will happen at your neuro appointment is confirmation of MS - really sorry to hear it, but delighted to hear that your neuro is planning on throwing the big guns at it: Tysabri is the best available at the moment after all. Do make sure you know all the pros and cons before you decide and make sure to ask for a JC virus test if this is a major factor in your decision - if you know what you want before you see the neuro it will make it quicker to get things organised.
It’s great to hear that you are back jogging and feeling better too. That’s RRMS for you! Here’s hoping that it’s a good long remission 
Karen x
Thanks Karen, I’ve been reading a lot of good stuff on here about tysabri but am also aware of the risk. I’ve decided that if I’m offered this then I’ll go for it! Am feeling happier than I was earlier and have decided to go to yoga tonight - am interested to see if I can still do any of the balances - maybe some bubble wrap would be useful!! Now - just need to keep busy for the next few weeks until my next appointment! xx
Just a quick update - another hospital letter received - confirming that I am eligible for DMDs and that my options include tysabri! Am feeling really happy about this (weirdly!) - I’d been hoping I could have this as I’ve heard so much about it! Neuro will discuss my options when I see him in 4 weeks. I feel like u should celebrate - how strange is that!!!
Ooops “I” should celebrate… u are welcome to join me…!
Hello, Sorry for the diagnosis, hugs xx It is lovely to read your positive attitude and the bubble wrap really made me laugh! Good luck for your next appointment and treatment. Sam xx
Thanks Sam - I didn’t need the bubble wrap, I managed to do all the balances no problem!
Thats excellent news,and if you get started on the Tysabri quickly you may well remain as fit and well as you are now…now thats got to be good eh.
Pip
Thanks Pip! One question - obviously I’ll ask my neuro when I see him next but does anyone know - do the lesions heal eventually? I’m still learning about this crazy disease. Also wondered if anyone is on gilenya or tysabri is the better of the two? Hope you’re all having good days, this site has been a godsend and really helped keep me sane - thanks all! Have great weekends! x