My story so far… the ‘highlights’ for want of a better word.
I posted on here approx 18 months ago having just returned from a Doctors appointment, where I was told the weird electrical buzzing I felt everytime I flexed my neck, actually had a name… My original post on here- which I cant find now- was written during a panicky Google session where it dawned on me I might have MS.
An MRI on my cervical spine came back normal and I forgot about it… until nine months later I had a bout of suspected optic neuritis and decided to utilise my private health cover with work. Cue second MRI on brain and C-Spine with evoked potential testing, again - all came back completely normal. I was patched off by my neuro and told to come back if I got any more symptoms.
The symptoms did come back - L’hermittes only - and I have now arrived where I am now, newly diagnosed (RRMS) and awaiting my referral back into the NHS system to see the MS team.
My most recent MRI shows three brain lesions, one which enhanced (C-Spine still clear) but I am feeling ok I am very lucky that currently my symptoms are very mild, they really cause me no issues at all.
However my Neuro has said my MS is ‘highly active’… He said that because I have had 3 relapses in one year (that I should consider starting treatment immediately, and that I might qualify for one of the newer drugs (Tysabri in particular)
I’ve done alot of reading and spoken to a couple of people I know with RRMS - one of whom is on Tysabri and has been for 8 years, and one who has been on Betaferon for 12 years. Both doing great with little progression over that course.
I cant quite get my head around the idea that I am currently feeling totally fine, and could continue to do so, but I am faced with a decision about whether to start treatment that could have side affects and / or risks… I have read that early treatment is recommended and comes with a better chance of being less affected further down the road… Perhaps my ‘wait and see’ approach is a little naive.
I realise no one will have answers to the above, just wanted to ponder to an audience who will understand where I am coming from