Not sure if I’m using this site correctly in the way I’m replying, as I wanted to reply to you all individually, but am still confused since the site changed its layout, please forgive me!
Thanks for all your replies. That’s certainly interesting about no radiation in MRIs - am seriously doubting his competence now, although I was told by my rheumatologist that he was the best. Hmm. By the way they have tried to blame everything on RA but the arthritis is now in remission so I made sure he noted that yesterday. I live in Lichfield and saw this neuro at Tamworth but could easily get to Stoke - presumably there is a good one there as I will go private next time. Neuro yesterday said that if MRI shows nothing he will have to pass me to another Neuro anyway as he cannot do anymore for me.
Interesting about mentioning MS first though, as he has always mentioned MS but only as a vague passing comment - it really is almost like he wants me to say it first. He can’t understand why I want an MRI as he doesn’t know what he’s looking for - apparently.
And yes the bowel incontinence is crippling my life, it’s like my secret shame that I’ve tried to hide for last five years but has gradually got worse and worse to the point where it’s happening at work and it’s only a matter of time before its exposed. I know that when that happens I will not be able to face going back as I’m already experiencing some belittling and humiliation due to the memory and word problems etc. In fact I was told yesterday that I have to consider redundancy as they want me to work full-time but I can’t (currently do 30 hours since 2007 when symptoms seriously increased). They just have no perception or understanding whatsoever of how bad the fatigue is. Yesterday was a bad day with the interview at work and then the neuro in the afternoon! I’m now off today with stress, stressed to the ceiling with it all.
By the way, thanks Karen for replying to me a couple of days ago - I had a question about mebeverine - sorry didn’t round to saying thanks at the time, I am truly grateful for all your help.
The actual MRI experience doesn’t sound too bad. thanks again for all your responses. I love this site, it’s become like a life line to me.
Take care all and kind regards