First post here, hoping someone might be able to suggest something!
My mum has had PP MS for around 25 years. She’s struggled through but the last couple of years she’s really gone downhill. Numerous chest infections, a nasty bout of pneumonia, extended stays in hospital have all taken their toll. She’s been in a wheelchair for around 20 years and has been struggling with pressure sores for around 15 years. After a 3 month stay in hospital the year before last she started losing the use of her hands, and as a result of her being in hospital, also lost her physio place. She has had some private physio on and off over the last couple of years but nothing routine and now we’re in the position where she has little ability to move her hands at all. She has little quality of life. To top it all off, I live 500 miles away.
My brother has been living with her for the past 4 years but has now decided he needs to spread his wings and is planning an extended trip to the other side of the world. Mum cannot live on her own anymore so we’ve come to the agreement that she should come to live with us. We’re currently looking for a property where we can all co-habit (myself, partner, dogs and mum) but the question is, how do we go about moving her? (The property will be bought by myself and my partner, she owns a proeprty but we’re considering the money from that to go towards her care)
She has a social worker (who she rarely sees) and various OT, MS nurse, consultant types and has various equipment items lent from the local authority (hospital bed, hoist, commode, wheelchairs). I’m assuming that the social worker SHOULD be the main point of contact for transferring things (including her financial benefits) but, based on previous experiences, dealing with the local authority can be a VERY slow and time consuming process. The last thing we want is to have the move dragged out over a 6 month plus period during which time mum could quite easily get another infection, and generally disheartened by the whole thing.
Has anyone moved a relative with MS? Or anyone with MS moved across local authority boards (in this case we’re looking at a move from Wales to Scotland)
Any advice, or suggesitons gratefully recieved! (Have tried contacting my local CAB but they never have anyone available on the phone!!)
Many thanks xx