I’ve had MS now since (officially) December 2012 when the Neurologist confirmed the diagnosis given to me by another Neurologist in June 2012. After posting on the New Diagnosis or Before Diagnosis pages I feel I can now join the Everyday Living one.
I would give anything to return to some kind of normality, be the person I was before, but after experiencing 2 chronic fatigue episodes after working 3 days in a row during the past month, I now need to accept my limitations (but not allow them to bring me down). I’ve been trying to get back to normal hours at work (I work part time in a nursing home) but haven’t been able to since returning in December 2012. Obviously management are getting quite frustrated but that’s for another post (Grrr Bosses post springs to mind hahahaha). Last week after working Saturday, Sunday (for 5 hours each day) and Monday (6 hours) the fatigue hit like a train at lunchtime. My dad picked me up from work at 3pm and I was in tears for 2 solid days afterwards. I felt completely out of control, emotionally drained, like a ten tonne truck was sitting on my shoulders stopping me from moving anywhere (I guess you all know these feelings). It wasn’t until the Thursday when I had a second Brain MRI scan appointment that I had a bit more energy to get out of bed, shower and dress (albeit extremely slowly but I did it ).
This post is so interesting for me and as I have the MS Therapist coming to discuss fatigue management on Tuesday this week I shall certainly ask whether Modafinil would be suitable for me. I don’t care what the pro’s and con’s are, it would just be nice to be alert during the working day - I don’t care whether I’m bed bound on my days off. I hate the feeling of not being completely alert during the day - I feel like I’m not giving 100% to anything I do. My brain is saying “of course you can do it” but my body is saying “please, please for gods sake, stop NOW”.
A friend of mine who’s mother has ME has mentioned something called “ENADH” - has anyone ever heard of it? He said it’s been a lifesaver for his mum and has helped keep the fatigue under control.