I was diagnosed with MS after a MRI scan in Gloucestershire Hospital via letter and was basically left hanging. In the interim I moved to Birmingham and re-registered GP and they quickly had me in with a neurologist, MS nurse and took my case to board to discuss and consider treatment options. All in the space of 3 months.
I received a letter from my neurologist to say that (I very luckily) have been approved for Kesimpta, however they can not retrieve my MRI from Gloucestershire hospitals so I need to have another so they can have a starting point and confirmation of my diagnosis.
I feel so grateful to have moved to such a great NHS but so annoyed that my initial MRI scan has been ‘lost’. My mind is spiralling about if I do have MS and I am also 10 weeks in awaiting a decision for a critical illness claim.
Has anyone else had a similar experience at all?
That sounds a bit rum, given that they’re all digital these days. The films from my first MRI scan 25 years ago lived under the spare bed for many years, but those days are long gone.
You could tear your hair out trying to track down the file from Gloucester or you could say okay well never mind let’s just have another. The latter sounds to me like the path of less resistance.
Thank you. I think it is just an accept and move on thing. It is out of my control. Just feeling sorry for myself! Also have decided I hate letters regarding my MS, I don’t know why it just really unsettles me.
From past experience of changing NHS trusts, I understand they don’t tend to share patients medical records. Your new hospital would probably want to start their own baseline medical results on you anyway.
Tbh I’ve never seen my own MRI scan results b4, apart from when I had a brain hemorrhage a few years ago and after a another scan a few weeks later, the blood had pretty much been reabsorbed by the body so I know MRI results do change.