Hi. I got diagnosed at 19 with MS after an MRI scan and have had two more over the years where very little has changed. No major relapses to report. Just a few challenging summers. Having moved up North and my new neurologist is questioning my original diagnoses. I’m 31 now and as far as he can see, completely fine. He did not however have access to my notes annoyingly so I am waiting for his thoughts on my condition in writing when he has access to my medical history.
How common is a misdiagnosis of MS? Has anyone had similar experiences? I’m all confused and annoyed actually because if he is right I’ve lost the best decade of my life through holding back, trying not to exert myself for fear of things getting worse. And how else do you explain the tingling. The fatigue (my partner reckons I’m just tired). I’ve not had any really bad symptoms though so I just don’t know any more. If I don’t have it then obviously thats wonderful news and I shouldn’t be complaining but it is just such a strange possibility and I really don’t know what to make of it. Nothing has changed until I get his feedback but it’s a mean idea to put into my head without my notes in front of him.