I’m probably about to get myself banned for being controversial and criticising the MS Society, but being a member has no benefit or advantage for me. All it does is regularly ask for donations and tell me what wonderful work and research it does and how grateful those people who do benefit from that work and research are.
If you have no benefit and are resenting your membership then why don’t you resign?
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I doubt you will be banned for offering an honest opinion and suspect you are stuck with us for as long as you wish.
No point in listing everything MSS does for us MSers, because it’s all on the homepage for those interested. I will go for a topical example in todays press instead.
Caitlin Astbury at the MS Society said it was “a really exciting study” that built on previous research funded by charity. “These results show that special stem cells injected into the brain were safe and well-tolerated by people with secondary progressive MS,” she said. “They also suggest this treatment approach might even stabilise disability progression. We’ve known for some time that this method has the potential to help protect the brain from progression in MS.
“This was a very small, early-stage study and we need further clinical trials to find out if this treatment has a beneficial effect on the condition. But this is an encouraging step towards a new way of treating some people with MS.”
Doctors encouraged by early-stage trial of MS stem cell therapy | Science | The Guardian
Ok, it’s only at the promising stage and not likely to help us directly, but hopefully, younger MSers will see the benefit and that must be a good thing.
Early research trials stem cell injection into brains of people with MS | MS Society
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I have to say I’m sick to the back teeth of them pestering for donations, email after email, I’ve actually spoken with someone there to say I don’t like this. I’ll give you an example, last Friday I received through the post STOP MS asking for me to donate, now I’m actually going to donate for this, but then Monday morning there’s a email, Hey Jean have you opened your post yet, its time to donate, well I have to say I saw RED, bloody cheek, I’ll do it in my own time. I decided years ago to donate twice a year to the society, seems that’s not enough, don’t they know that some on here, luckily not me are only living on benefits.
Jean
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Yes cause for optimism, but it will be too late for me, further studies and clinical trials take years.
You’ve said this so much better than I could.
Thank you.
That’s pretty much how I feel.
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A few months ago I commented on a post. The comment was neither abusive or insulting, didn’t contain bad language but I did say I felt there was little support from the MS Society, particularly for those in the advanced stages.
The Moderators removed the original post, not just my response, and the Forum doesn’t allow me to find and exchange messages with the person who posted.
The moderator even ignored me when I asked why it had been pulled. The only reason I could think of is that an opinion which admittedly could be seen as criticism is not allowed.
So how long will it be before this one is taken down 
Jean
I must say that is poor and hope it was just a mistake, or someone being a bit trigger happy. Nothing wrong with expressing a point of view, even if you happen to disagree with it.
Time will tell
I could’ve understood it if either the original post or my response had been in any way abusive, threatening or insulting. The original post was about the lack of support from the MS Society for someone in the advanced stage of MS. I agreed and shared my own view, clearly someone was offended. Not offended enough to stop asking me for donations though.
I see now that the support role is no longer offered by the organisation, although I think where local groups have survived they can and do offer all kinds of support.
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Apparently technically I’m not a member so I don’t need to
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