Received my Mavenclad (Cladribine) medication and am starting my first dose today
Bring it on MS! ![]()
Has anyone taken this DMT, or is currently taking this one? I’ve heard a lot of good things, so fingers crossed it works ![]()
Received my Mavenclad (Cladribine) medication and am starting my first dose today
Bring it on MS! ![]()
Has anyone taken this DMT, or is currently taking this one? I’ve heard a lot of good things, so fingers crossed it works ![]()
My only problem was how to get the tablets out of the packaging!
Other difficulty was finding a time take it when it was going to be convenient for the five days.
Bon chance
Thank you
Yes I’ve heard the packaging can be a bit fiddly; taking mine tonight, so let’s see what happens!
LOVE the label in big enough letters for anyone’s MS to read and tremble! Take that, MS!!! ![]()
@alison100 exactly!! ![]()
Hope your first dose went well!! How are you feeling?
Thank you @mackenzieblackman
I am feeling okay thank you; a few aches here and there, and was very tired yesterday, but final dose of the week today, and then start back again on 22/9 ![]()
Hi guys - have started Week 5 meds today - fingers crossed for no/minimal side effects this week!
x
Hey, can I ask how you have gotten on with this? I’m due to take it Monday for two weeks but a bit apprehensive tbh, I feel like a pin cushion at the minute as my dr had me jabbed with anything and everything ahead of Mondays first tablet.
Hi @adamvyse - personally I have gotten on well with Mavenclad so far. During the two weeks I was taking the tablets, I had barely any side effects, maybe few aches and pains to start with. After finishing the second week, I have noticed an increase in fatigue, but generally okay - so that is something to keep in mind as a potential thing to watch out for.
Just make sure to keep well hydrated. There are also a couple of really good Facebook groups (if you’re on there) for people taking the meds, which I’ve found really helpful too.
It’s quite a strong drug, so I can understand your concern completely - as far as I am aware, it is one of the big hitters in treating MS, and personally I’ve heard a lot of good things.
I’m sure you will be fine ![]()
Hi @laurenm
I am new here and also about to start Mavenclad in a few weeks (still need to have a Covid jab) but I should be on it in early December:crossed_fingers:. How are you feeling these days? Do you think it has lessened any symptoms you had before? Thank you and wishing you all the best. ![]()
Paulina
Hi Paulina (@mozajka)
Sorry for the delay in getting back to you.
I am feeling good - a little bit tired, but expected with my Immune System being lower. My head feels clearer, and a few symptoms such as numbness and double vision, seem to have calmed down. I guess I will see the full results once I finish the second round next year.
I received my Year 1 blood test results today, and my lymphocytes are at 0.7 (down from 2.3 in March), so the meds are working which is good news! ![]()
I’m sure you will be fine and if you have any other questions, or just want a friendly ear to listen, please reach out ![]()
Take care,
Lauren
Received my Year 1 blood test results today, and lymphocytes are at 0.7 (down from 2.3 in March), very pleased that the meds seem to be doing their magic! ![]()
Thank you @laurenm and great news on the blood test results. Glad to hear as well that you seem to feel difference and no bad side effects. I hope you keep getting on well with the meds and it only gets better and better. I am counting down weeks until I can start mine, terrified but excited too (3 more I hope!). Keep us updated please and wishing you all the best x
I am on day 4 of mavenclad traetment cycle 1 - no real side affects as yet but wondered how people have got on inbetween week 1 and 5 in terms of avoiding illness with reduced immunity? Bit anxuois seeing as we have a really bad Flu strain at the moment!
Great to hear you are doing well and with barely any side effects. I got on okay in between treatment weeks and felt generally fine, I personally just made sure to avoid anyone that had a cold etc and stay clear of crowded places - especially given the flu ‘crisis’ at the moment, that might be a good idea to try and do if you’re able to, or wear a mask (if you can), to be on the safe side x
Hi Danielle,
Glad to hear you’ve had no side effects. I am a week ahead of you (started my 1st week on 8th Dec) and similarly to you, I’ve not felt any worse (maybe a tad better overall). It is hard to say yet as yesterday i had quite a bad flare up with pins & needles all over my body, but I think this was caused by physical strain more than anything else (I did some hard intensity workouts which I have not done for a while so I think this is to blame)..but I feel ok now! So fingers crossed for you too
Similarly to @laurenm, I try to avoid crowded places, although I had to commute to London last Monday, but I wore a mask on train and tube and agreed with my manager to leave the office ahead of rush hour. I appreciate it is not easy for everyone to avoid commuting or crowds especially so close to Christmas.
Plus I’ve stocked up on vitamins and supplements, can’t hurt, right? ![]()
All the best, keep us posted how you get on with Mavenclad!
Paulina x
Happy New Year. How are you both feeling these days? I’m about to start week 2 of the pills on Monday. Weirdly excited and a little scared (bit less than last time thankfully!). I realise we’re at slightly different stages of the dmt - I hope it’s going well for you. Paulina x